Introducing myself

Introducing myself

Hi! Having MS has frustrated me, limited me, knocked me down for a bit, and eventually released me from fears I had that kept me from doing certain things and from becoming someone I want to be.

Since being diagnosed with MS in 2008, things I have done for the first time include: yoga, trapeze, traveling abroad, ending a long term marriage, running for and being elected to public office, walking a marathon, and writing.

My MS is invisible, but it affects me greatly and I put a lot of effort into managing fatigue and other symptoms. I find sharing our experiences to be among the best coping methods for living well with MS. Listening to others living with MS always teaches me something new that helps my perspective.

I write in my blog, "Keep Doing What You're Doing," at stacieprada.blogspot.com, and MSAA shares my posts sometimes.

10 Replies

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  • Hi sprada

    I sincerely hope that you are feeling as well as you possibly can be today? And it is wonderful to make your acquaintance.

    I am so genuinely sorry to read of your MS and I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Hello sprada, wonderful to meet you. I am also new here. But I am not new to communities like this and I have a blog (http://jimandms.com) where I share everything. I see that you have to deal with fatigue and I have to say that is the second worse for me a close second behind leg pain. People just don't understand the level of fatigue that most of us deal with.

    So it is nice to meet a kindred spirit of sorts. I have just started yoga myself and try to stay as active as possible but it is a challenge most days.

    Have a wonderful day and I hope that you are feeling well.

    Jim

  • Thank you for introducing yourself, Jim! I'm looking forward to reading your blog and seeing another perspective on living with MS. I read a couple of your posts and like how you take what's in the news and apply it.

    Take care!

    Stacie

  • Kudos!! Keep fighting the good fight!! Amen!

  • I want to say hi to you both sprada and JimAndMS . I was just going through some older posts and happened apon your's. We would love to have your input on this Roller Coaster ride they call MS.

    I'm new at this as only being dx'ed 18 mos ago, and always looking for answers. :)

    Would love to hear from you both and how your doing?!

    Jes ♡

  • Hi, Jes!

    I'm sorry you're having to live with an MS diagnosis, but I'm heartened to see you seeking ways to live with it! That will be your best life skill for living well with MS.

    I see from some of your posts that you have a lot of symptoms that you're trying to determine the cause and treatment. I hope your health team will get to bottom of them and you'll get some relief. You're right on to suggest MS when a doc says it's just aging.

    I live very well and have been able to find a sweet spot of pushing myself to do things I enjoy and respecting how MS affects me. I do monitor my health pretty diligently to find patterns and identify problems when they're smaller than they would get in the past.

    That plus a good attitude, I think, keeps me happy I can see from your posts that you do too!

    Best to you, Jes.

    Stacie

  • sprada no one has heard from you in a year. I hope and pray everything is ok. Your post seems like you were taking steps to making a bad situation better! So I hope you get this and hop back on. This is a great place to continue sharing!

    Thanks,

    Rob

  • Thanks so much, Rob! It's been a great year and really tough year, but I'm managing well and see a light at the end of the tunnel for some life issues that need to resolve. I'm hopeful that my increased spasticity may mellow out. In the meantime, I'm having a great time with friends and family and doing fun things. I hope you're doing well too, Rob, and again I really appreciate you checking in! :)

  • Hello Sprada,

    Good for you! I hope things are going well for you and you have been managing MS as well as you can expect to 😉! Have a great day!!

  • Thanks, Kevin!

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