Just introducing myself.: Just introducing... - My MSAA Community

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Just introducing myself.

Peruzzot profile image
14 Replies

Just introducing myself. I was diagnosed just before Christmas 2016, but under the new criteria would have been diagnosed back around March 2012. I'm currently 48 years old. So for almost 5 years I got a lot of wishy-washy answers for what was happening to me. I hate wishy-washy answers for anything. So far though my episodes compared to others have been relatively mild. Some vertigo, constant fatigue, occasional bouts of amnesia with short term memory, and some writing difficulty. But MS hasn't made me an indoor cat yet. My in-laws would love for me to turn into indoor cats like them. Not my nature and never will be. ☺

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Peruzzot profile image
Peruzzot
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14 Replies
Kenu profile image
Kenu

Welcome to our crazy 😜 group of MSers🙏. This is a wonderful place to vent and find out lots of information on MS from people who care and live with it also 👍. I was diagnosed twenty three years ago and still upright and going 😁. Things can be tough but try to stay positive and get a neurologist that specializes in MS. Find out what is going on in the MS world, new news and old information that can also be helpful 👍. 🙏🐾Ken

Peruzzot profile image
Peruzzot in reply to Kenu

Thank you.

I'm currently on my 3rd neurologist. I was stationed overseas with the Army when I was starting to suffer from MS. The first 2 neurologists I had specialized in brain traumas as that is primarily what the military deals with. The first one I saw was in the process of moving back Stateside so I only saw him once. The second got smart on MS fairly quickly so that she could better help me and a few military dependents who also have MS. I'm now in South Carolina seeing a neurologist who specializes in MS. He's been great so far. When I was still in the process of moving here, I had found some information that the Charleston MUSC hospital had an MS Center. When I went over there to get some information, no one knew what I was talking about for an MS Center, even in the neurology department. One lady started calling around to see where the center was in the hospital but kept going on about muscular dystrophy, despite my constant corrections for multiple sclerosis. I gave up and left.

I have started getting involved with a local support group I found through the MS Society. So far so good.

Fancy1959 profile image
Fancy1959

Hello and welcome Peruzzot, from Fancy1959. I perfectly understand your sentiments. I to hate anything that's not defined accurately, as I too, am hnot wishy-washy type person. I also love the outdoors and still fight, even though it's a losing battle, to not be, an indoor cat so to speak.

We all follow slightly different paths during our journey with MS. I'm glad you have found us here. This is a safe place to come and ask questions, voice concerns, or simply speak to others who truly understand. This chat room is full of some of the most caring passionate individuals I've ever had the pleasure to work alongside with. By sharing experiences with each other there is much we can learn from one another. I look forward to getting to know you better. The more you give involved in the chat room, ask questions, and voice concerns the quicker we will get to know you and you will get to know us. Until we have time to get to know one another better please take care. Please remember that together we are stronger in our fight to be this monster we call MS.

Peruzzot profile image
Peruzzot in reply to Fancy1959

Thank you. Though today the down pour outside is forcing me to stay indoors. 😣 I'll still get my cardio in today though. I have a Gazzelle that I won in a raffle drawing during Milwuakee's fitness week about 10 years ago while I was stationed there. I had no idea what the prizes were when I entered the drawing. I filled out the stupid card so my fellow Soldiers would leave me alone for not entering. I won the grand prize! 😁 When I was first called and told that I had won a Gazelle, all I could think of was an African animal called a Gazelle. I asked how it was legal to own one and where I could keep it. The lady started laughing and explained that it was the brand name for a portable elliptical machine. That made a lot more sense!😊 I've put quite a few miles on it and it has traveled the world with me.

welcome to a wonderful site ~terry

Peruzzot profile image
Peruzzot in reply to MS_Indestructible

Thank you.

ssdw1958 profile image
ssdw1958

Hi I’m ssdw1958 I guess you would Cail me an indoor cat not that I want to be my legs have a mindset of there own but the weather is getting better so I can atleast go on the porch and I do get out when I get a ride if you have a way to get out Enjoy 😊 life to the fullest and be happy 😃

Have a great day

Peruzzot profile image
Peruzzot in reply to ssdw1958

Thank you and sorry to hear you're being forced to be an indoor cat. Is there anything that could help you be more mobile and independent? My great grandfather had been confined to a wheelchair due to injuries suffered in WWI. He constantly complained that it kept him from going up stairs without assistance. But wheelchair have come a long way since the early 70's.

Peruzzot profile image
Peruzzot in reply to Peruzzot

Also I've seen several now that are made for going "off road". But those are also very expensive and other than wounded warrior programs I don't know of any other programs that can help pay for those.

greaterexp profile image
greaterexp

Welcome! None of us wants to hear that diagnosis, but we are usually so relieved to finally have a name for all our crazy symptoms and to also get some treatment.

Thanks for joining in!

Peruzzot profile image
Peruzzot in reply to greaterexp

Thank you.

CraigS profile image
CraigS

Good luck to you. This has been quite an ordeal for me, so I appreciate that you are going to keep trying to have a quality life. I was diagnosed around the same time as you. And I’m trying to make the best out of what abilities I have left.

I hope you will fight it every day.

Craig

Peruzzot profile image
Peruzzot in reply to CraigS

Thank you.

Peruzzot profile image
Peruzzot

Thank you and yes it's great having a doc who specializes in MS. I finally don't feel like I'm the one educating the Doc about MS based on my own research. That is frustrating.

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