Vision: Does anyone have experience of... - Multiple System A...

Multiple System Atrophy Trust

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Vision

BlueBeachHut profile image
6 Replies

Does anyone have experience of difficulty finding glasses that work effectively? My husband had neck dystonia so can't move his head very much and is finding it very tricky to get glasses (long and short distance). We've tried several pairs now and none of them work well which increase his feelings of imbalance. We've asked our GP to refer to an opthalmologist at the hospital but they have said they can't help.

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BlueBeachHut profile image
BlueBeachHut
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6 Replies
Photo1250 profile image
Photo1250

Adrienne had the same problem. Very difficult to do any kind of eye test although her ophthalmologist tried very hard. He concluded that the best he could do for her was to leave her distance glasses alone and fit prisms to her reading lenses so her focus was at knee length so she could read and see a tablet on her lap to watch tv, etc. She couldn't read so much because of tremor, but did watch programmes (mainly on a laptop set up on front of her - chair/commode, and, flexibly height wise an ironing board!). This worked, but I'm afraid her eyes have deteriorated since. She still does see, but listens mainly to the odd programme. We also have Audible and Libby on her tablet for audiobooks. She listens to them a lot. Bit of a protracted answer, but, in a nutshell - prisms. Ian

BlueBeachHut profile image
BlueBeachHut in reply toPhoto1250

Thanks so much for your reply Ian, very much appreciated and we’ll definitely look into this!

Helenhooter profile image
Helenhooter

I wear prisms but have to wear a second pair on top for closer work

Blueirises profile image
Blueirises

My husband had similar issues. Though not a perfect solution he had varifocals for general use and a pair of reading glasses for reading . good wishes.

BlueBeachHut profile image
BlueBeachHut in reply toBlueirises

Very helpful many thanks for replying

Monkeyfeet1 profile image
Monkeyfeet1

personally, I have prisms but I am n due another eye test. The Hospital have said I’ve got the correct prisms and the optician does not understand! I think they don’t understand MSA.

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