So sad to say my sister Debbie who was only 64 passed away from MSA on Saturday. She had been very poorly for a long time but her swallowing started to decline about 2 weeks prior.
What an horrific disease, and I’m sad to say that the care and help from the relevant authorities has been poor.
Love to everyone living with or caring for people with MSA x
I’m so sorry. i hope you take some comfort in tge fact she is now free of this horrible disease.
love to you and your family xxxxx
We all know that at some point we will have to write a similar message ourselves, but the cruel part about this condition is you have no way of knowing when.
The only comfort we have is that the sufferer is now no longer in pain or suffering and knows they have been loved to the last.
Take time to grieve and adapt.
Paul and Sue
Morning, I'm so sorry to hear of the loss your sister. Sending you love.
I echo your thoughts and feelings regarding the care, not including the hospice care. My friends, before she passed away was extremely poor.
I’m so sorry, lots of love xxx
So sorry for you loss.My wife passed away last March with MSA it’s such a horrible condition and most doctors and nurses don’t know anything about MSA.
Very sorry for your loss. My own wife, another Debbie died this day 3 weeks ago, aged 60
We had a more positive experience care wise, in that Debbie received very good care - particularly so from our local hospice service over the past 6 months. We based in Ireland.
As others have said, take comfort in the fact that your sisters struggle is finally over.
Take Care
Thank you, I know about your Debbie, I cried when you told us. You take good care x
RIP Debbie - I can only agree with your comment regarding the authorities Jolanes
I’m so sorry xx
Dear Jolenes.
Im sorry to hear about your Debbie, my thoughts are with you and your family and anyone who knew Debbie,
Yours Alec
so sorry , so young 😢
Undiagnosed 
Understanding potential diagnosis
Great News that MSA Trust is on Health Unlocked
Just introducing myself
