My Lovely Dad passed ❤️

[Hayley1418]

Monday 13th Jan after 2 weeks in hospital my lovely Dad passed away. Dad was about 8 years into his MSA journey initially diagnosed with Ataxia but last 2 years diagnosis changed to MSA. Dad had pnemonia & this time was just not strong enough to fight. I am so proud of my Dad he struggled everyday but he carried on as best he could. I had been told that generally MSA suffers typically pass quietly in their sleep - unfortunately this was not the case for Dad - on Sunday they were putting tubes up his nose down into his chest & Dad was upset with the pain. Dad became non verbal & I found that really hard - I missed his voice - he would mouth words to use which we could sometimes understand. Dad is now at peace but I missed him so much - miss caring for him - speaking to him xx We have collected the death certificate today MSA is on there - good the profile of this awful illness needs to be raised - we were at times having to explain to hospital staff what MSA is xx It’s awful & I will forever be proud of the fight my lovely Dad put up xx 💔

[mandg]

Hayley, I totally understand, my husband had a similar end, we thought the tubes may be the answer to helping, but the distress it caused was worse, for both of us, and that he couldn`t communicate was horrible. Its been just over 9 months now for me, and everyday I re live those last few days and cry. I wish I could have him back. My thoughts are with you x

[Yanno]

My thoughts are with you. Jackie died last April with pneumonia and so I understand what you and your dad went through.

I know Jax wouldn’t want me to be unhappy, we were always so positive about life and yet I miss her every day.

Well done Haley for getting MSA on the death certificate, as you say the profile of MSA needs to be raised when we can

Take care, Ian

[Gill-C]

I really appreciate both you and mandg sharing your experiences with the forum. It’s very brave of you both, especially as your loss is still raw.

You clearly tried your hardest for your loved ones in an impossibly difficult situation. It is a reminder to all us MSA sufferers to support our carers by planning for the worst in the end stages of MSA whilst hoping for the best and to discuss as much as possible ahead of time with those we love.

My thoughts are with you at this time

Gill x

[Whitefeather1]

My thoughts are with you at this hard time. I'm glad MSA is on the certificate.

My lovely friend Mag passed one year ago on the 13/1 from pneumonia, I miss her each and every day.

Take care of you now xx

[Ovx823k]

Sorry for the loss of your da. My wife passed away in March 2023 with MSA after about 5 years with MSA.Lets hope they find a cure soon.My wife did not want any flowers at her grave side she wanted donations to the MSA Trust. So friends and family raised nearly £1100 instead of buying flowers.

[chester2107]

oh so sorry , i lost my dad 5 years ago , still miss his lovely smile and how positive he was

sending huge hugs and treasure all the memories you had with him xxx

[Jolanes]

So sorry about your lovely Dad xxx

[Derkie54]

Hello,

So sorry to hear that news, our thoughts are with you at this sad time.

You all did your best for your dear father, remember the good times and take care.

Derek