Gone but never forgotten...

[RhiMallorca]

Well, here I am again as a carer for someone who suffered for 4 years since last swallowing and managed to hold on with every fight he had!

My dear friend, was put on end of life medicine a couple of days ago because this horrible illness got to his last muscles in his face and could no longer open his mouth, and passed away last night at 11:20pm.

I was so upset that I didn’t go see him yesterday because I thought he wouldn’t want to hear me get upset.

I saw him on Friday, and told him I was sorry our fun ended here, and that I’m so glad our paths crossed, he was such a lovely man. I took him outside even though he couldn’t open his eyes because of the morphine, he went outside in his garden for the last time, I gave him his last shave and haircut and held his hand whilst listening to his favourite music, described to him the colours of the flowers I had bought him and That they were on his bedside table. I was going to go tomorrow and see him but he’s let go, I’m so happy he’s not in any agony anymore even though it hurts for me to let go.

I’m so happy that his loved one was right next to him when he passed away. He would of wanted that.

RIP my friend, you have taught me a lot about my new career as a carer and a lot about myself too, I’ll never forget these memories, I already miss you.

[chester2107]

so sad , but he is at peace now , and i expect loved those times with you ,

sending hugs xx

[Yanno]

You sound like a wonderful carer who gave of your all to your new friend. Even though the time has been short, you will have learnt a lot about the challenges of MSA and so you would have much to offer in this forum going forward.

If you have the time and strength to help, please stay a round to share your knowledge. What ever you do, good luck going forward, you have a wonderful attitude towards those you look after.

Take care, Ian

[RhiMallorca in reply to Yanno]

I think that’s a great idea, thank you

[Derkie54]

What a nice friend you were.

[FredaE]

He was so lucky to have you there to look after him

[Spookytookey]

So sorry to hear this, but how lucky he was to be cared for by someone who clearly put his needs first. Big hugs x

[Hellebelle]

That is such a heartfelt post and I have tears in my eyes as I read this. You gave him such comfort and eased his passing from this world. Thank you from the bottom of my heart for being such a compassionate and caring human being. I pray every day that a cure can be found for this cruel disease that took my dad and many other poor souls.

[Startreckersdaughter]

So sorry for your loss this is such a cruel illness I’m still struggling the loss of my dad in April it’s so hard 😔

[Kiwimagic]

May he rest in peace and may you find peace knowing the comfort you gave him x

[Alovmar]

This is what scares me, the not knowing what is going to happen to my husband.

[rideabike]

Very touching....brought tears to my eyes. Death is such an unnatural thing and we fight it to the end. Thanks for sharing my dear.