Liver Transplant in April last year due to Budd-Chiari secondary to ET as cause. Feel I want to break free of benefit one day, grateful for it the next as my mood and motivation changes without warning. Feel great, then feel drained! managing 3-4 hours of tutoring a week in line with permitted work regulation. I'm not confident I could up the hours quickly were the ESA to be taken away due to another ASOS medical ( which i'm sure is around the corner - i've had two already. I feel vulnerable as well as guilty that I should not continue claiming - many are much worse off than me.
Does anybody have advice or similar experiences?