Hi All, Like many peops I get random thoughts swilling around my mind and I sometimes need to commit them to paper to 'clear' em out. The following is an account of my diagnosis which I have attempted to set in rhyme. Maybe some of you will relate to parts of it. Im just putting it out there, Cheerz. Jed
I were diagnosed wi' a Myloprofilo. , No a Myloferprolative . . No I were diagnosed wi' a blood 'disorder' back in 2006,
Tis still a mystery to me how I copped for it, but me bone marrow were up to all sorts o' tricks.
All that I know is that I were always worn out - whether I'd grafted or sat in me chair,
And somehow I lost a stone in weight, tho' I weren't stressed coz I didnt have a care.
A funny thing was I were very hot in bed 'wey hey there's a first time for everything' says me wife,
But this were like I proper wet the bed, and it aint normal in adult life.
So I were sent off t'd docs by 'er indoors' for a full on MOT,
I'd to provide a sample of me blood and of course me pee.
The phone rang late one sunny afternoon and me doc were on the line,
I thought 'ay up lad summats up 'ere' as I were expectin' it all to be fine.
I must admit I were a bit shell-shocked after that call and I always thought meself 'ard,
And at the hospital blood clinic I were told me bone marrow could be scarred.
Of course I couldn't tek it all in and it mostly went way over me head,
And I had to have a marrow biopsy, lying on me side ont' bed.
A week more worritin passed me by and we went to get the news,
He reckoned I summat called Myelofibrosis coz they'd gathered a number of clues.
I asked if it were worth buyin' a new suit or would I have years to go,
He said right matter o' fact ' we'll start you on a dose of these ere chemo drugs and some Allopurinol.
So 'ere I am now religiously poppin 'em down each and every day,
They help to keep me bloods in check and keep me gout at bay.
I'm the only one int' land with this Myelo-thingy I used to moan,
But I found this on-line forum so now I'll never feel alone.
So THANK YOU folks for sharing your views on your MPN's,
From a guy who is eternally grateful to have some good honest on-line friends.