Has anyone using Interferon had a dry red/pink r... - MPN Voice

MPN Voice

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Has anyone using Interferon had a dry red/pink rash on body?

NewBloom profile image
7 Replies

I've had this for over a week now, not sure if its related to PV/Interferon.

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NewBloom profile image
NewBloom
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7 Replies
PeggyS profile image
PeggyS

Yes, I initially got rashes when I started using Interferon, but it went away again after a few weeks. I also got really try itchy skin. I now found a dry oil spray, which seems to help.

MPDmoose profile image
MPDmoose

I've been using interferon for nearly 15 years, albeit at relatively low doses, but haven't had these symptoms. I think my skin is a little dryer and I get occasional itching, but the itching is also a well-known symptom of the underlying MPN.

Marie95 profile image
Marie95

I have mini rashes that come & go, very very dry skin & hair, started on this med in Oct, and its been a difficult transistion at times, have you also had any unstable blood counts, bad headaches really bad fatigue at any time? or any other problems on it?

NewBloom profile image
NewBloom

I also started Interferon Oct 2012,I agree its been difficult. My bloods have been okay so far my platlets did go up but now coming down, I've also had the headaches, very bad fatigue most of the time (last 4 days been good, the longest period to date), ache in my leg. The most nights I inject meds, I have an ache in my back, become cold then hot and my sleep isn't so good, now a rash. It's all good fun LOL! Not sure how I've stayed on it to be honest. I hope your bloods become stable soon.

Marie95 profile image
Marie95 in reply to NewBloom

yes, after injecting, i'm sometimes cold, but within an hour, am overheating, and it stays that way until bedtime, it also makes my eyes sore & gritty, I nearly packed it in myself, over Xmas, I felt that bad, but last month have had a little more energy, stick with it Newbloom as some people say it improves after the 6 month period (we hope so) its so good to chat with some else re; whats happening , I'd talk to the Hem & GP if the rash remains too long, but don't worry its mentioned it the patient leaflet let me know how you go on with the INF, Take Care

stricnine profile image
stricnine

I too have very noticed dry skin, not so much a rash, only been on interferon since Dec 2012 though, so still in the early stages of balancing the doses....

One thing I do think helps, especially with the headaches etc - drink lots (of water, unfortunately)... as I get really dehydrated the day after each injection.

C

Aime profile image
Aime

Hi, I have PV controlled by venesection only (at the moment, as platelets are on their way up!). I get really dry patches of skin, come out in red blotches a lot and got Viscotears from the optician for very dry, gritty eyes - which are wonderful and free on prescription. I overheat in the mornings, excessively sweat during the night, then have chills - that's without being on meds! Hopefully won't need anything else but only if my platelets start behaving. Is anyone else like this - without the meds?

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