Reduced platelets and feeling worse?: Has anyone... - MPN Voice

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Reduced platelets and feeling worse?

tinaj profile image
3 Replies

Has anyone else experienced this. My Platelets weree over 1,000 now they are starting to come down, only with baby asprin, but I feel worse.

Feeling more tired than usual no energy and getting a bit breathless more than usual

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tinaj
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isidora4 profile image
isidora4

tina

How good that your platelets are going down with just aspirin - can't understan why you feel worse, unless the aspirin does not agree with you. Do you see a haematologist regularly?

I get very tired also, it seems to be linked ET. I am on aspirin only also but I have had ET for about fifteen years. Was on Hydroxicarbamide for many years but was taken off when I developed two ulcers on my right ankle (caused by the Hydroxi... Do see your haematologist about feeling worse now . Hope you soon feel better.

tinaj profile image
tinaj in reply toisidora4

I don't see him till the end of Oct. I have just had onother scan done to see if spleen has grown since last scan 3yrs ago. Hopefully the scan will show something.

Thank you for your reply

nicki2 profile image
nicki2

i feel like that i was on my hydroxycarbamide mon to fri 1 a day 2 sat and sun they tried to get platlets under control they tried cutting it to 1 mon to thurs i feel really tired lethargic but they are happy with my platelet count so are not changing the way i am taking it i have had et since 1994

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