What to do about mouth ulcers?: Im now starting to... - MPN Voice

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What to do about mouth ulcers?

BloodZero profile image
20 Replies

Im now starting to get mouth ulcers, tender palate and gums.

Can anyone give offer some advice on how to treat it?

Regards

BZ

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BloodZero profile image
BloodZero
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20 Replies
Dazakella2010 profile image
Dazakella2010

Hi...

is this another symptom... I keep getting this... it’s so painful!

BloodZero profile image
BloodZero in reply to Dazakella2010

Yes, since starting on Hydroxy.

Dazakella2010 profile image
Dazakella2010 in reply to BloodZero

Oh no mine is before treatment

EleanorPV profile image
EleanorPV

Bonjela or bicarbonate of soda or honey. I also had a mouth guard made to protect my ulcers from my teeth. Please seek help if they don’t start to heal in 5 days.

BloodZero profile image
BloodZero in reply to EleanorPV

Will do.

Eadaoin profile image
Eadaoin

Ask your dentist. Before I started Hydroxy mine told me get Corsadyl Daily mouthwash and use it twice a day. Also use a Soft toothbrush. Also if I did get bad mouth ulcers to get my GP to prescribe Predisolone Soluble to use as a mouthwash.

BloodZero profile image
BloodZero

Thanks. Will do.

Sanga profile image
Sanga

Hi.

What do u have?

I have PV. My iron has to b kept low so ferritin is around 2.

I live with soreness on my tongue and what can only b described as bald patches and ulcers regularly. The dentist and gp referred me to a mouth specialist who told me after taking swabs for other things, that these mouth issues are common with B12 deficiencies.

There was nothing she could prescribe for it but I keep very good mouth hygiene and rinse well after brushing and use a gentle toothpaste as it can irritate.

I drink hot lemon and honey every morning which is a natural anti inflammatory.

I eat a well balanced Mediterranean diet including salmon plus vitamin supplement.

Hope this helps

Sanga

BloodZero profile image
BloodZero

Thanks Sanga. Ill look into this.

Vanuatulot3 profile image
Vanuatulot3

Simple speak to your health professional, tell that person about your side affects ask them to give you alternative medication if the one you are on is to blame, ask questions from them, We are all different and others my react in an other manner don't have your head filled with fear

Panda2017 profile image
Panda2017

I find good old warm salt water to rinse my mouth does the trick! I also use bonjella but usually revert back to the salt water.

BloodZero profile image
BloodZero in reply to Panda2017

Thanks, i will try.

Wyebird profile image
Wyebird

‘Blue m’ is purposely for gum problems and for people in chemo.

I find it amazing.

hunter5582 profile image
hunter5582

Mouth ulcers are considered a sign of HU toxicity. When occasional - you may be able to tolerate - but definitely something to talk to the doc about. Suggest that you do not accept "its just mouth ulcers" if you get that response as some have reported. My docs office indicated the ulcers are the result of immune system compromise. I also ended up with a case of Thrush as a result. Something that did help with the ulcer pain and healing is a product designed for this purpose - Periosciences - AO ProVantage. No scrip needed - not expensive - and really does help. Hope that helps.

BloodZero profile image
BloodZero

I feared it was toxicity. I dont think we have those products here. But i will try to workout an equivalent.

Thanks for your info.

Mycancerconcern1 profile image
Mycancerconcern1

Started Hydroxy June 2018 and just started getting them since the beginning of 2019. Washing your mouth with salt 2-3 times per day helps.

BloodZero profile image
BloodZero

Thanks. I have started salt wash once a day. Will try more to see if it helps.

kp27kathleen profile image
kp27kathleen

My dr. prescribed Magic Mouthwash and it worked very well It's a compound from the drug store. Sure hope it helps

katiewalsh profile image
katiewalsh

Hi. I didn’t recall seeing your “name” before you answered mine today so I checked for your prior posts. I used to get mouth sores but after I taking Hydroxyurea correctly, modifying my toothbrush & toothpaste I no longer have the problem. Mine wasn’t at all related to toxicity. I take 9 tablets per week. If you’re still having problems I can share some suggestions. Katie

BloodZero profile image
BloodZero

Thank KW, the ulcers went away in there own after a couple of weeks.

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