Peg Inreferon Hair Thinning (Hair Dye/Products) - MPN Voice

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Peg Inreferon Hair Thinning (Hair Dye/Products)

Dooright profile image
14 Replies

I've been on PEG Interefon for nearly a year (current dose 90mg weekly). I lose loads of hair but since September my hair has become noticeably thinner. It's like hair loss is now outweighing new growth - it cant keep up.

Question - if I have my hair highlighted will it further damage the hair?

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Dooright profile image
Dooright
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14 Replies
hall2 profile image
hall2

I have my hair coloured at the hairdresser and it’s fine. I use a caffeine shampoo which helps reduce the thinning out.

Dooright profile image
Dooright in reply tohall2

Thank you and yes someone did recommend caffeine shampoo too so I'll give it a go 🤞

lizzziep profile image
lizzziep

I lost hair on hydroxy but continued having it coloured. I had various colours plus I had highlights via foils. It was always ok. Regained hair on Rux (including my moustache 😱) now on a combo of Rux and hydroxy so that must be confusing for the follicles!

mhos61 profile image
mhos61 in reply tolizzziep

You made me laugh. You have a great sense of humour lizzziep, despite what you’re going through…

Dooright profile image
Dooright in reply tolizzziep

Thanks Lizzie I'll carry on as normal then...I mean what's the worse that can happen 👶😆

dogsandhorses profile image
dogsandhorses

I didn't lose hair on Hydroxy, but 4 months on Pegasys I lost tons of hair. Now on Jakafi, and the hair loss is slowing down, but hasn't stopped. My Dr. says it takes at least 90 days to fully exit your system. Hasn't been quite 90 days yet, so I am hopeful it will stop. I have my hair highlighted every 6 months or so, and it doesn't seem to make any difference to how much hair I lose.

Dooright profile image
Dooright in reply todogsandhorses

Thank you. I think I'll just carry on and get the foils done 😊

Hydranga18 profile image
Hydranga18

I have foil highlights and no problem.. but colour doesn’t seem to last as long. I’ve a lot of hair shedding… and lately a very itchy scalp.. would appreciate any remedies for this …

Dooright profile image
Dooright in reply toHydranga18

Thank you 😊 I get itchy skin generally since I've been on Interferon and so have been prescribed Fexofenadine (antihistamine) and it doesn't make me drowsy.

bordeauxgirl profile image
bordeauxgirl in reply toDooright

I have PV , I have lost 1/2 the volume of my hair over 14 years, when I asked the doc 'is it the Hydroxy causing the hair fall, no not at all says he. skin still itches like nothing I have ever had , again . Q. Is it the Hydroxy causing this 'NO not at all'. Change of doc started coming to my Island, same questions asked , his answer was ' I am a blood doctor not a hairdresser. The Dermatologist treated the horrendous itching rash for all the time, eventually held up his hands to heaven (palms to the sky for divine guidance maybe )and finally said ' Well, I don't know what the cause of the rash is' . The skin on my legs feel like it could make a scammers crocodile purse. I GIVE UP! HAPPY CHRISTMAS TO ALL .

lizzziep profile image
lizzziep in reply toHydranga18

I use T-gel shampoo, available at chemists, cheapest at home bargains, it usually sorts my itchy scalp, untit flares up again.

Hydranga18 profile image
Hydranga18

Thank you for replies re itching scalp … A Merry Christmas to all

Exeter21 profile image
Exeter21

I am on Interferon & hair a bit thinner but mine very long. I have high lights every 3 months & never changes it’s fine. It was my previous HU that reacted & caused hair loss with me. Grew back on Interferon 👍

Dooright profile image
Dooright

That's great thank you! I will rebook my hair appointment 😊

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