ET AND HRT

[VTAR24]

Hi just looking for advice from anyone on this latest blood tests platelets 950 no treatment for this as shortage of interferon and doc is happy enough to Hold off for a while and see but to monitor I've had no history of clots or stroke thankfully and I'm cal r but my question I've been put on hrt patch for sore joints amd feeling hot at times my hematologist says that's notin to do with Et and to try patch and see does it relieve these symptoms I'm 49 is anyone on hrt and managing ther ET also Tks

[ainslie]

there is a excellent video on the MPN voice website about HRT, very good quality info

[VTAR24 in reply to ainslie]

Tk you can u send me link

[Mazcd Partner MPNVoice in reply to VTAR24]

healthunlocked.com/mpnvoice...

[MissLesley13]

Hi I can't answer on hot but my powered also always high and they never wanted to put me on treatment as they like us to go as long as we can as in age wise. I also am 49 and have just started hydrea. The reason they started my treatment as the fatigue was the thing that was getting me. I just couldn't manage with that anymore . I hope you get some answers soon.

[Spanelmad]

Hi have ET , rheumatoid arthritis and a degenerative spine with nerve damage and I'm on a hrt patch.I've used it for 4 years! Starting before my diagnosis of ET.I've also had bilateral pulmonary embolism and I still went back on the patch.For me the symptoms of severe night sweats(changing sheets) disappeared and the joint pains became more manageable.

At the end of the day it is a risk but you have to.weigh that up against your symptoms.

[ciye]

I use patches, they do help. Sadly ET can cause similar symptoms. It's sad how many symptoms are dismissed, we know how we feel.