Just joined the group. I'm 45 and from the UK. I have just been diagnosed with ET following raised platelets after suffering a cardiac arrest in September. I am on Hydroxycarbamide. I am recobering well. Looking back I have probably experienced ET symptoms for a number of years. I have gone from no medication to about 10 a day - mostly for the heart. I am experiencing alot of shoulder pain, lower back pain and neck pain. I was wondering if anyone else with ET experience these symptoms or if some are down to my medication. Thanks for all your help. This is a great group.
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Alan_P
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Back pain can occur for reasons independent of MPNs and medications; however, it is worth noting that back pain is one of the the known common side effects from hydroxycarbamide. If this is a new symptom with no prior history of back pain, it would be reasonable to suspect an adverse effect. Suggest you let your MPN care team know what you are experiencing. You will likely need an evaluation to assess other potential causes of the back pain. The good news is that there are other options if the hydroxycarbamide is the problem.
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