Question for the ladies, I finally got HRT patches on the 2/11 only for gp to take me off then due to risk of clotting with ET. I also have high blood pressure and one side of heart pumps more than other. So frustrating as the reduction in the night sweats and flushes has been great.
Do any of you have issues taking HRT, I have emailed haematologist to see what she says.
Hi I was also told by my haematologist I couldn’t take HRT. The hot flushes we’re keeping me awake all night. A compromise was made I use the HRT gel you rub it on your thighs this has helped loads & is much less risk of blood clots than the tablet form. I also wear a lady care magnet which helps other symptoms. For the brain fog I use the herbal tablets Ginko Bilola which took a week to start working but have definitely helped me loads. Claire x
This is the link to the lady care magnet ladycare-uk.com/
I was on oral HRT, oestrogen only, when I was diagnosed and my haematologist was happy for me to continue. I am triple negative and have no history of clots. I have been transferred to a different haematologist who, this week, has suggested that I move onto patches, which are less clot risk . I haven’t as yet as I’m waiting for the GP to follow up as they manage this. For me, the HRT affords me a better quality of life and I would be very reluctant to stop completely. And I have not had any issues with the oral HRT to date, only benefits.
I have been on hrt since 47, haematologist, acknowledged slight increased clot risk , but ok'd it . I was reluctant to add more meds but I was suffering from such awful insomnia that I wasn't able to function, and the effect was amazing, I felt human again.When it comes down to it , you should be the one who decides wether the increased risk is worth any potential improvement in quality of life
They halved my pill Kliovance to the 1/0.5 version - brain fog ever since !But still on it!
I used Black Cohosh with success but as always check with your GP before taking.
I am on gel oestrogen . I have MF. I checked with Heam first. All ok and BP fine.
My Haemologist has sent gp a letter with recommendations, to be fair on my gp she is the practise hrt advocate. She was just being cautious
Hi Ciye, I've been on HRT for a few months now, and the main benefit has been a reduction in the amount of sweat during night sweats. No longer drenched several times per night, it has helped my sleep and not waking up distressed as often. My haematologist is fine with me being on the patch, so long as it isn't oral they are fine with it. I have had a blood clot previously and have high blood pressure. My gp takes instruction from my haematologist, and though they considered putting me on a slightly higher amount of HRT to help with the sweats even more, we have decided to stick to a lower amount due to the blood clot risk. It's important to take my aspirin every day, other than that the benefits outweigh the risk for me, as the night sweats were so bad, and now feel more manageable, and I no longer feel so sleep deprived.
This is difficult dilemma something I’ve looked into . I think even the contraceptive pill is a risky option for younger women with et. doses of hormones in Hrt are less than the combined pill but anyone taking hrt is 4x increase of clots than general someone who isn’t taking HRT, so for those of us with ET or any other disorders that increase your risk of clotting, I imagine the risk is even higher!!!the risk may be less if you take patches apparently but still high in my view
Just read some of the comments, yes balancing quality of life over risks is an important consideration when deciding
How long for Besremi to work?
feel at my best when haematocrit is between 39 and 42
Myelofibrosis
Myelofibrosis- GVHD graft, versus, host, disease. 
decreasing white blood cell count
