Hi All I live in Herts UK and have just taken a call from my Haematology Team to advise that there is a worldwide shortage of Pegylated Interferon due to a change in factories, which won’t be up and running until next year! And my only option is Angagrelide, have tried Hydroxycarbamide which didn’t agree with me.
Has anyone else experienced this issue?
Whats Anagrelide like?
Any thoughts much appreciated
Paisley - lots of people are having issues either the shortage too (if you search in this forum on ‘shortage’ you’ll see the kind of thing).
Many thanks
I was on Anagrelide for years and had no side effects. I was changed to PEG interferon last year. I'm due my repeat prescription for PEG next week so hopefully they'll have it in stock 🤞(I'm in Northamptonshire).
I’ve been on three tablets of Hydroxy for years and my counts are still like a roller coaster so in April they added Anagrelide into the mix ( two tablets a day) but my platelets still waver from 400s to 800s every time I have a blood test! They have just requested weekly bloods to see if there is a pattern. I’m 73. Had to have heart checks before going onto the Anagrelide, but I suffer no side events other than chronic fatigue. Guys said they would like me on Peg Interferon but because of the shortage…so who knows what’s next?
Good luck. We are all so different. You may breeze through it.
Thank you Garstongal for your reply.
Hi Paisldey24, we have posted an update about this, and will continue to monitor the situation and will continue to post updates when we have news
I have not had interferon for 3 weeks now. I had an appointment with the haematologist this morning, and the pharmacy has not even got its national allocation in recently. I am looking on it as an experiment to see what happens without it.
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