MPN Voice Living with MPNs Day 2019

[Mazcd]

Saturday 16th November 2019, 9 am – 5 pm registration from 8.45 am

Venue: Cavendish Conference Centre, 22 Duchess Mews, Marylebone, London, W1G 9DT

This will be the 5th Living with MPNs Day that MPN Voice has hosted.

This is your chance to hear the latest news on trials and treatments from leading experts in the field of MPNs, from the UK, Europe and the USA, specialist haematology nurses and MPN patients.

Full details for registering and paying to attend this event are here…

mpnvoice.org.uk/get-involve...

There is a registration fee of £10 per person to attend this event.

Please note that you cannot register for this event via MPN Voice.

[funnyfeet]

Hi Maz,

I’ve tried several times to register and it keeps coming up for healthcare professionals. It won’t let you continue if you say your are not a health care professional.

Help.

[Mazcd Partner MPNVoice in reply to funnyfeet]

I am sorry for any problems with registering, I have only just been made aware of it, I have been advised that you need to tick the Health Care Professional box and select other, and then type in patient. Hopefully Hartley Taylor Ltd will resolve this issue today. Maz

[Susana7 in reply to Mazcd]

I have emailed them yesterday, highlighting the problem with the online submission form, but no reply as yet.

[funnyfeet in reply to Mazcd]

Done. Thanks Maz.

[Mazcd Partner MPNVoice]

I am sorry for the problems in registering for this event, Hartley Taylor Ltd are working to fix the problem, it should be resolved later today. It was an error which is being fixed, and I apologize for any inconvenience this has caused any of you, and I can assure you all that this is indeed a day for patients and family and friends to attend. Maz

I am pleased to update you all, the problem has now been resolved, anyone booking online now need to click on I am not a Health Care Professional, and continue with the registration process. Hartley Taylor are extremely sorry for this and have worked quickly to resolve it.

[pontygirl in reply to Mazcd]

Hi Maz

What a pain in the rear for you, that works so hard for All of Us..

Just phoned the folk at fault and Hartley Taylor are most Apologetic for their Mistake..

Easy by Phone 4 minutes and we are Booked with Comfirmation Email Immediately.. 👍

Nice lady called Becky, much easier than messing with the Registration Form..

Looking forward to it, thank you Maz for All you Do for Us once again...

Mary xx

[Mazcd Partner MPNVoice in reply to pontygirl]

Hi Mary

Glad you have got it all booked. I have just heard from Hartley Taylor and they have resolved the problem and are so very sorry. Maz

[Susana7 in reply to Mazcd]

Thanks Maz, I have now registered online

[Aime]

Hi Maz, I really want to go and see you and everyone else but it looks like I am having 2 ops before the end of the year: 1 on each calf to release the tension and stretch the tendons and muscles. It looks like the first one will be in October and I will be in either a boot or plaster cast for 6 weeks so I don’t think I’ll be fit to go. Gutted once more but hope it all goes well, which it will and I would encourage anyone who hasn’t been to go. It’s so worth it.

Kindest regards

Aime xx😻😻

[Mazcd Partner MPNVoice in reply to Aime]

HI Aime, shame that you won't be able to make it, it would have be lovely to see you. Maz x

[Hidden]

Please can you look at having a patient forum in the future near Stockton Darlington or Middlesbrough Would like to attend but too far for us in Nirth Yorkshire x

[Mazcd Partner MPNVoice in reply to Hidden]

We will look into that for next year. Maz

[Hidden in reply to Mazcd]

Thanks Maz