SCT Journey No. 7 post sct

[LFCLove]

Well here I am 15 days post transplant!!!

Headaches, stomach cramps, diarrhoea, sore throat.

These are all under control with various drugs and even a sleeping pill to help at nights!

Not that it’s too noisy at night, but it never quite gets dark but they even cover this as a volunteer came round at the beginning and gave me a sleep pack which consisted of earplugs and a face mask!

I have had 4 bags of platelets and other blood products (all irradiated) transfused so far.

One injection of growth factor yesterday.

Have seen my blood levels drop after the chemo and a slow rise post transplant. Bloods are taken every morning just before 6am and results come in @10.05 on the dot!

Three days ago hair started falling out, but having been bald for many years, it’s not an issue, other than my t shirt being covered by what looks like snow!

Electric shaver came out and removed the remnants….Wow, it’s been many a year without a moustache🥸

Just a waiting game now and see the drs on their rounds to see what the next stage will bring.

Further updates to come

Keep the faith and we will fight this separately and together.

G.

🤓

[Pragmaticone]

Excellent news. Just prepping my home before I get admitted. I assume you have some blood counts. Did you have reduced intensity or Myeloblative?. I'm down for reduced intensity with Fludarabine and radiation.

[LFCLove in reply to Pragmaticone]

My chemo consisted of three types of chemicals, Fludarabine (Fludara), Melphalan and Alemtuzumab (Campath) over four days. Blood counts are still low but moving in the right direction..

Best wishes to you on your journey and may you be back home very soon.

🤓

[JediReject]

Well done ! Sounds like you're being well looked after and everything is going in the right direction. Fingers crossed those counts creep up over the coming weeks , , I recall it all seemed a tad surreal to me waiting on my daily results because I felt ok. Chris

[Mishie14]

congratulations! Very good to see you are getting better day by day. I cannot imagine how much courage this takes. Your sense of humor is also showing. Thanks for helping me start a new day smiling. Bless you!

[LFCLove in reply to Mishie14]

I'm glad it made you smile. I wouldn't say it's courage, it's selfishness to stay here a while longer to enjoy my family (5 grandsons)!!Laughter and smiling are the best medicine...

Sending you positive vibes across the pond ❤️

[Spanelmad]

Thanks for the up date ,I'm glad it's going ok !How's the eating going now?

[LFCLove in reply to Spanelmad]

It’s not great, appetite is knocked sideways but I’d say I’m eating at least 60% of all food offered. It is hard though as food is a continuous thought whilst here as its part of a regime which I understand but does not help.

As you finish a meal, you are given the choice for the next one 🤦🏻‍♂️

All the best

[Spanelmad in reply to LFCLove]

Keep the up dates coming, loving all the good news, eat what you can!!

[Hatchie]

It's always a small sense of relief when I see your updates. Glad to hear things are going well. I'm also curious to know how's the eating going? Are you loosing weight?

Keep up the good work mate, looking forward to update 8!

[LFCLove in reply to Hatchie]

Hi, as I said in reply above eating is only about 60%. Knocks your appetite sideways. Bonus is that my weight has been pretty consistent, so that’s a bonus.

All the best

🤓

[hunter5582]

Glad to hear that you are responding well and receiving excellent care. Wishing you continued success on this journey.

[Cja1956]

Sounds like you’re getting excellent care. Praying that you continue to improve and that you’re spending time with your grandchildren soon.

[azaelea]

Glad to hear you’re improving day by day. Best wishes that you’ll be able to go home soon and be cheered by your grandchildren.

[RoundTheWorld]

Great to read it is going in the right direction. Those grandsons will be very excited to see you when you are fit enough.

[JAB6]

Prayers and positive thoughts for you during your journey for a full recovery.

[Pachena]

Sounds like you are making good progress, G and I hope and pray it continues.

You are in good hands. I look forward to hearing about the days to come. Love your sense of humour 🤩

Best wishes to you.

Sharon

[Maurabawn]

Thankyou for sharing and please keep in touch. Sending you all that is good for your recovery.

[Ebot]

Great to get your updates. Campaign bulletins from the front! Am sure they will be invaluable to anyone who might be embarking on a SCT now or in the future. Look after yourself. Please keep us posted when you are up to it.

[LFCLove in reply to Ebot]

Hi, I hope my diary and observations will help someone, but please remember that everyone’s journey will be unique to them. It’s like a 1st time pregnant woman asking a woman with children how their pregnancy went! Some aspects will be the same but many won’t.

We are a global group of multi racial, multicultural people with something in common, we have a fight on our hands…

May we all continue to fight😍

G

🤓

[RedCardRob]

Your diary will definitely help because it is better to read the experience than being told of the probability of events.All the best

[Aldebaran25]

Yes, keep the faith! thank you for the update and for your good humour, I really appreciate it. Good luck for a steady climb back to healthy counts!

[MFBMT2011]

You’re right we have many things that match but our own path. I had reduced intensity with Fludarabine, Busulphan and Thymoglobuline-rabbit (excuse spelling) which was the gold standard 14 years ago, but these things change. I was ‘flattened’ three days before and three days after the cells arrived, and then steadily improved. In the end I had 9-10 platelets and 30 packs of hgb over several weeks. I lost 1.5 stone in weight but regained most of it!

You are heading in the right direction. Keep it up.

Chris (Princess Leia version)

[Flyingsteamer]

Sounds like you're on the right path and being looked after well. I know it is a tough journey but it really does get better.

[Scaredy_cat]

amazing you are eating. I was on nutrition by drip for a while. Also good you can still update us

[DiveGoddess]

wishing you Godspeed in this recovery process. Thank you for sharing your updates! Your community is here for you.

[KLCTJC]

Will keep faith. Prayers, love and hope! ❤️

[Minify]

Thanks for sharing your story. I’m glad you are improving. Wishing you continued steady recovery..

[Bluetop]

A tough journey, but glad you are coping. Thanks for the update and Weel Done!

[GardNerd]

Thanks for the update, and I'm so glad to hear it's going well. Stay the course. Stay strong. I can imagine those grandchildren are quite a motivator!

[SRH55]

Hi, it’s good to hear how you are progressing. I am now on day +393, I have kept a diary, noting my progress. I looked back to my day +15, I didn’t have diarrhoea, but terrible sickness & really struggled to eat, I was given anti-sickness meds which did help - it does get better. I remember well the nurses coming in at 5.30 am with the blood testing kits also the fantastic care I had from the medical staff

Sending very best wishes to you.

[LFCLove in reply to SRH55]

It’s good to know that you managed to keep your diary going and for getting to +393!! Well done.

I wasn’t sure at the beginning whether I’d be able to, but🤞🏻I’ll carry on.

Thanks for your support and best wishes coming back.

G

🤓

[Brendaf]

good luck with everything and keep ur chin up. LFC supporter

[CanadaG]

It's great to hear that you are well on the road to recovery. Stay positive and thank you for sharing these regular updates.

[Bullace]

All good wishes to you. It all seems to be going well. Thanks so much for sharing your journey. Hilary