Otterfield

[Cja1956]

Has anyone heard from Otterfield? Her name is Jennie and she had a SCT about a year and a half ago. She was very active on this sight until she had the transplant. I just want to know if she is okay.

[MCW22]

Also wondering about Peter from New Zealand (Still Kicking) (Biggles) Been no posts from him in a long time.

[Inca in reply to MCW22]

Me too I have tried many times to reach him in N Z,I chatted with him a lot now nothing.Hope he is having a holiday.must be over a month since contact,worried about him.

[Mostew]

Glad you asked . She has always kept us updated on how she is.

[ainslie]

I was wondering the same recently

[socrates_8]

Hey Cj...

Trust you guys are well...

Yes, I too have often wondered about how Jennie was progressing etc...

Jennie very bravely was always wanting to share her ASCT journey with us all...

Hopefully, she's just off vacationing somewheres...

Glad you're following up Cj...

Best wishes

Steve

(Sydney)

[Cja1956 in reply to socrates_8]

And she was very supportive of everyone on here. I sent her a private chat a few months ago and she never responded, which is unlike her. I hope she responds to this.

[Inca]

I was wondering too,she was such a brave girl.Thought maybe my pad was not getting mails etc.

[JediReject]

Having just read Jennies last couple of posts some time ago it would seem she had sadly relapsed quite dramatically. Though the last one gave some hope. From what i knew of her character there's no doubt Jennie would fight her setback with every ounce of her strength and I sincerely hope she is still battling. In true spirit she was concerned about her husbands recent diagnosis at that time.

It's a harsh reality of this type of Forum where living miles apart or in different countries you can become good or even close 'virtual friends' often sharing experiences and maybe aspects of family life, suddenly it ends and sometimes you never find out why.

I lost a good friend off this Forum a couple of years ago, I knew she was battling hard but it was a real shock to find out that she had passed from her Facebook page which her family updated. We exchanged messages only the previous evening and she seemed in reasonable spirits. I found her passing hard to come to terms with given our common bond and the friendship we forged over a couple of years of regular contact.

It's a good shout out to remember Jennie / Otterfield who contributed so much here and helped many with her good advice.

Regards -Chris

[Cja1956 in reply to JediReject]

It’s true, Chris. Even though most of us haven’t met in person, some of us have formed a special bond with each other. Jennie is one of those people for me. Her kindness to others and bravery and positive attitude going into her SCT was an inspiration to all.

I hope you are doing well and enjoying life.

Warm regards,

Cindy

[JediReject in reply to Cja1956]

Hi Cindy , thanks for replying. I'm ticking along and being honest hope to start enjoying life again. Reason being I've had many months looking after my elderly Father who sadly passed not long ago. Caring for him and the manner of his passing have taken a heavy toll on me. Having said that I'm glad I was still around to be able to do it for him hard as it was. His passing leaves a big void and I miss the old man. Thats enough doom and gloom I don't want folk getting their little violins out, I'm sure I will get my mojo and zest for life back soon.

Hope you are doing as well as possible. Regards -Chris

[Cja1956 in reply to JediReject]

I’m so sorry to hear about your dad. Losing a parent definitely leaves a big void. I lost my dad in 2011 and I still miss him. Grieving takes time and everyone has their own timetable. I hope you can eventually find some comfort in your good memories of him.

Take care. Cindy

[Inca in reply to JediReject]

So pleased to see your posts Chris,I think of you often,I am concerned for Jennie & for Peter ( still kicking)I did miss a lot of. M P Nbeing rather poorly & ages in hospital I was in regular touch with Peter as he is a potter & in N Z where I have close friends.You are so right ,just messages to each other without ever meeting becomes very special.Keep well Chris ,miss your posts & sure you have not aged at all! 💕🥰

[JediReject in reply to Inca]

Hi Sally thanks for your kind words, I intended to respond to you on another post a few days ago but alas unless I do things as they occur I'm afraid I don't always remember to go back to it which is why I eat only a half or two thirds of a loaf of bread nowadays, , the remainder having been cremated in the toaster due to my absent mindedness. Previously you mentioned your MF symptoms plaguing you which Im sorry about. It's not an easy thing to live with long term.

I still dip in and out here but developments in treatments have moved on considerably also much has been covered in detail over the years so there are only a handful of posts I feel I can contribute a view on or opinion about. Many of the good folk I often exchanged views with or had banter with in the Forum early days have gone for whatever reason. And of course I'm not the same person I was when I joined up here some 12 years since.

I do hope you hear from Peter he was a regular contributer and of course Jennie.

Take good care x (and I have aged terribly)

[Inca in reply to JediReject]

So pleased to have your post Chris.I feel exactly the same as you do.So many we knew are not on site any more….like us weary & forgetful …..MF is awful ,I managed P V all those years,but now I need transfusions & injections for my failing bone marrow.I am lucky I have had the same nurse every week for all the time since the P V started,he has horses like us & paints when he has time so we get on famously!Manage to laugh & taught each other English & French over the years.As hubby & I are now in our 80s ,the old age is is a shock as well.You keep going Chris you are just a young man still compared to us.Sending Gros Bisous to you & your family. Sally🥰

[liarose in reply to JediReject]

on this subject do you know what happened to violet aka twinkly. Used to liase a lot but then lost touch

[JediReject in reply to liarose]

Well its been some 7 years since I last heard from Violet, ,another quite inspirational woman who bred and showed Russian Terriers I think. Her kennel was called Potters Pride and her full name Violet Slade. Beyond that I have been unable to find any up to date information but something about her could of been posted 6 or 7 years ago and I missed it. We shared good banter over her attempts to convert me to a totally healthy diet.

Chris

[liarose in reply to JediReject]

Thank you Chris for replying . Wishing you well

[JediReject in reply to liarose]

No problem, and you also.

[Inca in reply to JediReject]

I remember her Chris ,she was a judge of dogs & showed her own all over the world.Think she was Twinkly 💕

[socrates_8]

Hey Chris & Cj...

Thanks for that and I am sure everyone here agree with your sentiments too... Jennie certainly was a staunch & humble supporter of everyone here... Hopefully, we might hear something shortly... Fingers crossed guys & best wishes to all...

Cheers Chris... (hope you're travelling ok too...)

Steve

(Sydney)

[Cja1956 in reply to socrates_8]

Thanks, Steve. Let’s hope that she reads this so she knows that we are all thinking about her and that she reaches out.

I hope you are doing well.

[socrates_8 in reply to Cja1956]

Hey Cj... Very much on the improve as we speak... See my response to Chris below Cj...

Chat again sometime soon...

Steve

[Cja1956 in reply to socrates_8]

Oh,my,Steve, you’ve really had a challenging last few months. I’m glad you’re on the mend and that you continue to get stronger every day. I hope eventually you are able to get a new bike.

Take care, Cindy

[JediReject in reply to socrates_8]

Well said Steve, I'm doing ok but I ought to change my profile mugshot because I've aged considerably in past couple years. In part due obviously to the march of time which I was told post SCT might be a quicker march for me and partly to the hand life deals to test your resolve.

Hope you are on an even keel my friend and not planning on taking up break dancing any time soon ref Ray Gunn 🦘 , ,

[socrates_8 in reply to JediReject]

Hey Chris...

Well... now that you've mentioned it... I did try some break dancing of my own...

I was run down by a 91yo 4WD a tad over Three (3) months ago now... X5 fractures (non-displaced to my pelvis). However, am off my crutches & walking upright again...

Unfortunately, my beautiful bike was totally destroyed just as I was endeavouring to arrange our next Fundraiser for MPNs. Started training again on my Spin bike recently, but it's a LONG... way back buddy...

Trying to find my next bike now, however, prices have almost doubled... Naturally, insurance never covers everything... BUT!

I am still here after my solo flying through the air exploits...

We're all getting older & that gravity is never too kind buddy... But we are still here!

Stay happy, safe & well Chris...

Steve

[JediReject in reply to socrates_8]

Ruddy hell Steve you sure don't do things by halves. . Not quite the definition of break dancing I had in mind.

Wishing you a speedy recovery as possible but if anyone can stage a grand comeback tour i'd put my money on you. . . . . .

[socrates_8 in reply to JediReject]

Cheers Cj & Chris...

That's the plan... Just seems a really long way back from where I'm sitting atm... But patience w/ self and just trying to regain some exercising consistency will see me make a return in due course...

In the mean time guys, pls do let me know should you hear from Jennie...

Ciao

Steve

[Anag]

Hello everyone.

I just sent Jenny a chat message. Hopefully we’ll hear from her soon. 🙏 Anag

[SRH55]

I was also wondering how Jennie was, I do hope she is ok.

[champ30]

I too have been missing her. She is inspirational....so strong.However I feel she was knocked back when she could not proceed with the SCT.Please get in touch Jenny.

[Cja1956 in reply to champ30]

I agree. She was very disappointed that it wasn’t successful, understandably.

[katiewalsh]

I wonder if MAZ might know & tell us. She told us before with the person I believe you mentioned Chris. Katie

[Mazcd Partner MPNVoice in reply to katiewalsh]

hi everyone, I don't know, sorry. Maz

[Bluetop]

Glad you raised this. I believe she responded to someone's query a little time after she had posted that her SCT was not progressing well and I thought then how brave to be thining of someone else's problem.

[Windy51]

hope she is ok