visual field problems

[Digger031145]

Have been having tests for just over a year for visual field abnormal.

Today I saw my Nuero opthalmologist who has said Hydroxycarbamide could be the cause of this.

He said 10% can get this and as I’d been on it 10 years it should be considered now. Also it could be what is causing me to have pigments at the back of the eye.

[hunter5582]

Glad to hear that you had the consult with neuro-ophthalmology. Sorry to hear about the results. it sounds like a change in treatment plan for the MPN may be in order.

Wishing you success moving forward.

[light]

Hi, sorry to hear that you are having problems with the Hu meds. Hope you can change Hu for more kinder meds. Wishing you well.

[Nerjalover]

I have got Sjögrens Syndrome since being on Peg interferon- for Jak2 ET. Get your rheumatologist to check this out it’s difficult to diagnose!

[Digger031145 in reply to Nerjalover]

what are the symptoms of Sjorgrens

[Nerjalover]

dry everything- mouth, eyes including fuzzy sight- fatigue. You can Google it.

[Digger031145 in reply to Nerjalover]

No I don’t have anything like that

[Nerjalover]

that’s positive then!