Steroid injection: I have a frozen shoulder and... - MPN Voice

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Steroid injection

Pippapot profile image
13 Replies

I have a frozen shoulder and have been offered a steroid injection. I am on Hydroxy and Aspirin.I am wondering if anyone else has had the injection and if they had any side effects. I am a little concerned that it's Kenalog, which I thought was banned in UK. Although I am desperate to get rid of the shoulder pain, I don't like the look of the listed side effects.

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Pippapot profile image
Pippapot
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13 Replies
EPguy profile image
EPguy

I had a partly frozen shoulder from my vaccine reaction. It was in the form of certain limited motions. I went to phys therapy and various pain meds early on, no difference. What fixed it near instantly was a skilled manipulative osteopath. There are not many Drs of this sort and it may not be what you need, but could be worth an inquiry.

It's a subset of osteopathy, this is an explanation of the specialty:

aacom.org/become-a-doctor/a...

Nickthedevil profile image
Nickthedevil

I have had steroid injections into my feet and ankles for osteoarthritis with no side effects

Pippapot profile image
Pippapot in reply toNickthedevil

Thank you, do you know what drug they used?

Nickthedevil profile image
Nickthedevil in reply toPippapot

I’m sorry, I don’t

Gaithersburg profile image
Gaithersburg

I have had steroid injections in my shoulder and hip and had no side effects but they didn't work for me. Hope yours are more successful. I had to stop my aspirin for a bit beforehand.

Exeter21 profile image
Exeter21

yes I have had 2 steroid injections on Hydroxy & interferon . Had no effect on platelets or anything to do with our MPN problems. However injections had no result either so I took advice & started weight training excercises on the injured arm & excercises. After 18 months it has improved considerably.

Unfortunately shoulders are complex & no quick fix whatsoever . Julia Exeter 👌

RietFontein profile image
RietFontein

Hi,

Had samd problem - about 1 month ago! Severe pain due to frozen shoulder. I am on hydrea 1000mg pd. Had the injection (combined with pain reliever) with no side effects. Relief was within 24 hours.

Ladygolf profile image
Ladygolf

I had issues with both shoulders due to sports injuries about 10 years ago. I was on hydroxyurea and aspirin and received injections of kenalog or depomedrol every 3 months for about 9 years with no bad effects. They provided good relief within a few days that lasted about 2 1/2 months. This past year I began doing water aerobics 4-5 times a week. After 3 months I noticed much less pain and more range of motion to the point where I cancelled my last two injections and am able to resume all normal activities. I will discuss this with my rheumatologist at my next visit but it seems the water put less stress on the joints while strengthening them. I recently had an ultrasound on my left shoulder because the rheumatologist wanted to see if the joint was bone on bone so the results will be interesting.

Pippapot profile image
Pippapot in reply toLadygolf

Thank you for your reply, that's encouraging. Perhaps I should try regular swimming. 😊

Minify profile image
Minify

I had a frozen shoulder with pain. The steroid injection with kenalog gave me instant relief. No side effects. It took several more months (with PT/exercise) until the range of motion miraculously returned.

Pippapot profile image
Pippapot in reply toMinify

Thank you, encouraging. 😊

LT55 profile image
LT55

I feel for you! I had frozen shoulder a decade ago. The injection was a life saver! No side effects. If your frozen shoulder is not from an injury - i.e., just started randomly and progressively got worse, please be aware that it will likely come back in your other shoulder as well (never in the same shoulder from what I learned). Mine came back in the second shoulder about 18 months after the first resolved.

The first time, I didn't find a doctor who offered the steroid injection until at least 6 months after I first had symptoms. As I noted, the injection helped, but wish I could have had relief sooner. And all in I had pain/symptoms for 12+ months.

When it hit my second shoulder, I saw my doctor within the first couple weeks of the inevitable symptoms - and got an injection at that visit - well before I lost much functioning in the should (in the "freezing stage" vs. the "frozen stage"). Never had pain after that and was 100% back to normal within 6 months.

Imkerin profile image
Imkerin

Hi there, I had a Kenalog 70mg (with Bupivacaine) injection a couple of weeks ago for a frozen shoulder. I have PV and take Hydroxy and Apririn. I had no adverse reactions at all and the pain in my shoulder has thankfully reduced. Best wishes with your treatment; a frozen shoulder is very painful.

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