below range RBC

[130396]

I’ve read tha beliwvrange RBC can cau muscle pain and spasm.

Mine are always low and I hit lots of muscle pain and get soasms in my trapezes.

“Larger muscles need a significant amount of blood and oxygen to function. They have to work harder when they don't get enough, which results in cramps. Muscle pain can be a warning sign of underlying anemic conditions.”

[hunter5582]

Suggest that you review your issues with a MPN Specialist. I believe that you are taking hydroxycarbamide previously. Sorting out what is the result of a MPN, other conditions, and the meds you are taking requires expert input.

Hope you find answers soon.

[130396 in reply to hunter5582]

my consultation is only interested in my platelet levels.

I’ve low RBC low hct high MCV high MCH

So that’s why I’ve posted here. Got multiple clots in both lungs too

[nightshadow]

You may need to ask specifically if the low RBC is causing the cramps.

I have low but not below range RBC and have found that magnesium supplements made a world of difference. Magnesium helps muscles relax. If you don't want to take the supplement without knowing if it would work or not there is a lotion called theraworx which contains magnesium. This lotion works very well for me before I started supplementing Mg. If the lotion relieves your cramp and pain then it could be that there is too little magnesium in your diet. From what I read, low Mg levels are fairly common and it is difficult to take too much so it is a fairly safe experiment.

[130396 in reply to nightshadow]

I already take 375mg magnesium twice a day and have done for many years.

I hate how this dazepam makes me feel. I need an answer as to why I keep getting these spasms in the sane place

[CLake4 in reply to 130396]

I had painful cramps in the legs and toes and was told by my MPN specialist that it was due to low iron after years of phlebotomies. I was told to take Iron supplements which then just led to more phlebotomies.. although the painful cramps did reduce tremendously after several months. (The body absorbs iron very slowly). It became a vicious circle and thus the decision to start Besremi.

[130396 in reply to CLake4]

What is bestytemi

[CLake4 in reply to 130396]

Besremi is an interferon based drug similar to Pegasys but I believe it was formulated differently from Pegasys to release slower in the body.

[HuckleberryH in reply to CLake4]

I had the same from low iron and found that vitamin E supplements helped. I was having bad restless regs at night and that completely stopped it. I also stopped phlebotomies and started Besremi.

[130396 in reply to HuckleberryH]

who prescribed the Besremi?

[130396 in reply to HuckleberryH]

is this Bedremi for ET?

[130396 in reply to HuckleberryH]

we’re yours spasms in your back?

[130396]

did you all have spasms in your backs or just legs?

Was your RBC in range?

[Beingpositive121]

I used to have terrible muscle/bone pain until i started having alkaline water. It's been a real game changer for me. I brought an alkaline filtered water bottle online. healthline.com/health/food-...

[130396 in reply to Beingpositive121]

Did you get excruciating spasms in your back