PV isn't all about numbers. Sometimes we feel happy with seeing light at the end of a long dark tunnel. Since diagnoses, 2 years ago, my RBC's have been outwith normal range. After a 11/2 years on Pegasys. I finally see my RBC count being lowered and my iron levels slowing increasing. This is with my HCT holding at 38. Nice to share good news
RBC heading towards normal: PV isn't all about... - MPN Voice
RBC heading towards normal
Really pleased for you. We’re having some great results with Pegasys!
👍😊
Hi what good news Eleanor do you feel a lot better now your iron levels are up I have been on Pegasys for seven months for my PV and do feel better on it but don’t know what my iron levels are will ask next time and my RBC count are at 43 which has come down over this last three months it’s great not having venesection it is good to see light at the end of tunnel stay well best wishes Poppy
Hi Poppy, I don’t know what my actual iron levels are. As far as i know MCV value is directly linked to the amount of iron available. Mine has been in the 60’s for over a year. Today it’s at 72. This appears on your FBC. Yes I have more energy, fatigue is still an issue.
Great news. 👍🏻
That’s brilliant Eleanor!!
So pleased for you Eleanor, little steps make big ones. More energy is fantastic, hopefully fatigue will lessen for you too in time. Grace X
Brilliant news Eleanor. Mel xx
Thrilled for you x
Great news so pleased for you