after struggling with my Primary Myelofibrosis for 3 years(lots of downs, symptoms, massive splenomegaly, totally blocked portal veins, on and off rux until I decided to stop for almost a year till now, lots of ligations, herpes, overweight, bone pain, night sweats, vein insufficiency, second gen covid, and recently hospitalised covid due to high fever, etc) a week after covid i did my own blood work and suddenly my Hb back to normal range(after 3 yrs below the normal range but never break low <10) is it a good sign? Temporary good or did they make mistakes in my blood work? Cause im off rux for almost 1 year and didn’t want to go back to my Myeloproliferative neoplasms specialist 😎
haemoglobin back to normal range?: after... - MPN Voice
haemoglobin back to normal range?
Written by
Dan39
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5 Replies
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congratulations, it’s maybe wise to retest in a few weeks at the same time of day and same hydration to check, fingers crossed for you
Why don't you want to go back to your mpn specialist? Your disease seems bad.
I would echo going back to doctor. Ignoring this disease is likely to lead to bad outcomes. This is even more true at the stage that you are at. But I do have to say that I empathize with going to the medical team. I already feel I spend a lot of time there.
Great news!! Praying it stays! In between tests I try to enjoy that moment of doing well. Keep us posted
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