Dizziness Nausea

[Paraic2021]

Have PV and been on Hydroxycarbamide since 2021 and tolerated well. Last few month have dizziness and Nausea on and off and not good. prescribed Domperidone. Consultant says nothing to do with Hydroxycarbamide and see GP. GP says all OK. Please any advice

[hunter5582]

Suggest getting a second opinion from a MPN Specialist. Dizziness and nausea are common adverse effects of Hydroxycarbamide. If the GP finds no other cause, the logical conclusion is that you are experiencing an adverse effect. My GP often says the simplest explanation is the best explanation.

[Paraic2021 in reply to hunter5582]

Hunter many thanks will try

[hunter5582 in reply to Paraic2021]

Yoda says "Do or do not. There is no try." The ongoing dizziness and nausea are unlikely to get better on their own. These symptoms need a proper assessment and intervention. As ainslie suggests, you will need to be persistent and refuse to accept no answer as an answer. Note that if the issue us the result of an adverse effect, there are other treatment options you may tolerate better.

[Paraic2021 in reply to hunter5582]

Hi Huntet sorry I cannot see comments from a Yoda but thank you

[hunter5582 in reply to Paraic2021]

Star Wars reference with relevance to managing healthcare.

There is no try

[Paraic2021 in reply to hunter5582]

Thanks Hunter

[Stevesmum42 in reply to hunter5582]

love that. So true. Regards Sandy

[ainslie]

I think Hunter maybe right with his view on that one, when docs don’t know or can’t be bothered they will shift you back and fore eg Haem to Gp and back and fore, very common, persistent and determination seems to work and don’t worry about ruffling feathers, sometimes they need a bit of that if they are not bothering

[Paraic2021 in reply to ainslie]

Thanks very much Ainslie.As I been on HU for 2 years and z tolerate it. the dizziness Nausea they say not part of it

[mhos61]

I would be asking, what tests did your GP do to conclude all was ok? Ear issues such as Menieres’s disease can present with dizziness and nausea for example.

Did anything change a few months ago when you first experienced dizziness/nausea? Are you on other meditations or has there been an increase in any medication? Sometimes it’s a process of elimination, but persistence and self advocacy with your healthcare team is required if it’s an ongoing issue.

Good luck

[Paraic2021 in reply to mhos61]

Hi Mos am on Clopidogrel and Statins and BP Meds all same for long time. GP seems to think all normal No Tests required. Had Ears syringed month ago but same dizziness and Nausea symptoms before and after. So at a loss

[mhos61]

Well, I hope it subsides for you Paraic, but if not persist for an explanation. It’s ok for you to be at a loss but not your healthcare providers.

Keep us updated!

[Paraic2021 in reply to mhos61]

Many thanks Mos

[Hidden]

so sorry to hear you’re feeling unwell. I’m not sure my experience with hydroxyurea will be helpful to you. I only took it very briefly because I had a horrible reaction. My best suggestion to you would be to consult with a naturopath for these symptoms. Best of luck in finding relief

[Paraic2021 in reply to Hidden]

Thank you Gran

[Frances1903]

So sorry to hear you have been feeling very unwell.

Interestingly I have tolerated this medication for 5 and a half years. Generally no dizziness or sickness so think something else has happened.

I am sure the right thing is return to your GP and discuss further, wonder if they will do a full blood test for you, as certainly your body is telling you something is not feeling right.

Please do let me know how you get on.

[Paraic2021 in reply to Frances1903]

Thanks Frances

[Paraic2021 in reply to Frances1903]

Hi Frances meant to tell you I have Blood Tests monthly including Full Blood Count but as Bloods within range Haemo Consultant says refer to GP rest you know

[Paraic2021]

Many thanks Hunter will do

[grandpa101]

have been on hydroxycarbamide for about the same length of time swapping between 500 and 1000 daily but have not had any of those symptoms by the way I have MF sorry I can’t be of more help

[Paraic2021 in reply to grandpa101]

Take care Grandpa

[Tipsy2023]

evening I had really bad dizzyness and labyrinthitis type vertigo symptoms after 2 days n Hydroxycarbamide I . Took proclirperazine for several months which helped but Dr Claire Harrison suggested I take Hydroxycarbamide at night which I have done ever since ..seems to help stopped prochlorperazine..

[Paraic2021 in reply to Tipsy2023]

Thank you tipsy I have been on on Hydroxycarbamide for 2 years and always taken Morning after I have breakfast. GP answer was we don't know everything !! so what chance have we got

[Tipsy2023]

hi Paraic my consultant said nothing to do with medication she had never heard of that side effect . But try the night time

love to know if it helps.

[Paraic2021 in reply to Tipsy2023]

Thanks you Tipsy

[Mandz12]

I take this medication hydroxycarbamide 500mg 1 a day then 2 following etc x it used to make me have nausea and dizzy spells. So I changed the time I have my tablets and it works .I take them before I go to bed sleep straight through aswell x

[Paraic2021 in reply to Mandz12]

Thank you Mandz