I have had ET for over 4 years, been on Hydroxycarbamide with no adverse effects.The last couple of months I have been getting increasingly lightheaded and dizzy, often feeling like I'm going to pass out. More recently started getting pins and needles in fingers. Is this a common side effect of ET or could there be something else going on?
Thank you
I’m post Et Mf and I also feel light/headed and dizzy. It’s usually worse when my hemoglobin drops and my anemia gets worse. I would definitely mention this to your doctor. My dizziness got worse when I was transitioning to MF.
Best of luck to you.
The tricky thing is that dizziness and pins and needles in fingers can be either the ET, a hydroxycarbamide adverse effect, or something unrelated. Sometimes timing is the only clue. This definitely something to discuss with your MPN care team.
All the best.
I hated HU...the worst side effects of all meds....I'd suggest keeping going for a bit longer and if no worse speak to consultant and ask for a change
I got 'vertigo' when my Hydroxy was increased. Awful and frightening. Needless to say I wouldn't do the increased dose after that as this was my third side effect.Firstly a skin problem and very painful. Second delibating breathing issues, this too went away when stopping the increase.
I carry around anti dizzy drugs as I occasionally feel dizzy.
Good luck.
Hi
What anti dizziness drugs do you use please? Thank you
Betahistine Dihydrochloride 8mg
Thank you!
You're welcome, let's hope they help.
ILL AGAIN.
Newly Diagnosed with ET 
Thank you for giving hope
Little red sores on lower legs
