London Conference : A wonderful & well planned... - MPN Voice

MPN Voice

10,445 members14,398 posts

London Conference

Exeter21 profile image
13 Replies

A wonderful & well planned conference I London yesterday . So pleased I made the journey. Amazing & inspiring speakers.

Excellent lunch provided & some great progress being made with MPN s.

A great chance to meet many people with MPNs. And listen to the expert clinicians & scientists working to improve these rare diseases. Thanks Professor Claire Harrison for her work & help to organise these events .

Written by
Exeter21 profile image
Exeter21
To view profiles and participate in discussions please or .
13 Replies
Tipsy2023 profile image
Tipsy2023

Hi I can only agree

I am so glad I made it brilliantly organised lots of information and people who might understand how you feel . Nice boost

Exeter21 profile image
Exeter21 in reply to Tipsy2023

Yes brilliant day 👌

Kormoran profile image
Kormoran

Thanks for your encouragement and feedback. Very important.

Ebot profile image
Ebot

Completely endorse what you say. Super informative, well paced programme. Incredibly lucky to have so many world leading MPN experts in the room. And such great humans too! Very many thanks to the indomitable Prof Harrison and the wonderful volunteer team at MPN Voice. Fantastic day.

Margo18 profile image
Margo18

Good morning. I would like to join the other commenters on Saturdays MPN day

We are very lucky to have the opportunity to come to such a well organised event. So much hard work goes on behind the scenes to give us a full day of information

Thanks to all at MPN Voice and the consultants who give their time to share their knowledge with us

Thanks

Margo

Ashburnmam profile image
Ashburnmam

Totally agree with all comments on well organised and professional event. My wife who is my support gained a great deal as information delivered was in an understable way with the more scientific.

Barbados19 profile image
Barbados19

I also wish to add my thanks to such a well run, professional and friendly event on Saturday. I was in awe of all the knowledge in the room and because so many questions were put to the panel and answered so brilliantly I came away reassured that my treatment plan is on track. As an added extra I also made a new friend who coincidentally had the same consultant as me so we will be keeping in touch. Professor Harrison and all the volunteers at MPN Voice do a wonderful job and I feel very grateful to have been able to have been there on Saturday.

Gaithersburg profile image
Gaithersburg

Yes it was another fabulous forum and I enjoyed meeting others with an MPN and the talks and break out sessions were very informative too.

Rupy profile image
Rupy

It was my first forum. So glad I didn’t miss it. I was so impressed with all the information given and shared knowledge! Thanks to all the organisers and the amazing panel!

ETket profile image
ETket

It was a really interesting and well-organised event and great to get to meet some other people with MPNs. Thank you very much to all involved.

HoundSept2022 profile image
HoundSept2022

I could not agree more with everything you and others have said about Saturday. It was my first forum, too. I found it informative, enlightening and empowering. We are lucky to have so many dedicated professionals working for us and for those yet to be diagnosed. Brilliant day. Well done, MPN Voice team!

Buddhability profile image
Buddhability

My first and couldn’t agree more with everyone. Re-assured and a definite deeper understanding. Although I’m under Claire Harrison’s team, I’ve never actually met her but it felt like an honour to see this awesome woman. The whole event, the speakers and lovely participants, an incredible day!

DougyW profile image
DougyW

Is there a list of experts in the UK and their locations? I'm currently near Bristol but looking to move to Devon and wouldn't mind having a consultant who knows more.

You may also like...

Living with MPNs conference 5th November London

What a great London forum

What a great day the London forum was I learned such a lot by such great consultants .lt was lovely...

Scottsdale Conference

Hi I live in London and have recently been diagnosed with prefibrotic Myelofibrosis. My son and his

Trip to London for my scan

yet. I was lucky enough to be seen by Prof Claire Harrison at Guy's and she has asked for more...

Recommendation on Haematologist in London

Hi, I am travelling to London for some work and plan to see any good Haematologist for ET. I am male