MPN horizons conference

[EleanorPV]

Thought I would share a huge exciting resource I came across.

Special interest in past 'MPN horizons conference' web link below.

mpn-advocates.net/mpn-horiz....

I personally had no idea leukaemiacare.org.uk are involve in promoting and supporting MPN's. I received some of this information at my local patient haemotology group, where we had a visit from the regional leukaemia care representative.

[mhos61]

Thanks so much for these links.

[ksos]

Thank you!!

[Aime]

Sounds good Eleanor. I also like the idea of regional care reps. Is this person a medic? Just wondering if we could have regional MPN reps.

Kind regards Aime xx😺😺

[EleanorPV in reply to Aime]

This person is a trained nurse but her job now is to promote patient led haematology Scottish groups.

[Aime in reply to EleanorPV]

That’s great Eleanor. Kind regards Aime xx😺

[bruddery]

.....they are great links thanks Eleanor. Bruddery

[Rachelthepotter]

Thanks for the links: as you said, great resources.

[Mazcd Partner MPNVoice]

Just to let you know that MPN Voice is represented at the MPN Horizons Conference, I attend the conference and our chairman, Jon Mathias isalso part of the MPN Advocates Network, he is very involved in the promotion of MPN information to people across the world and building links with organizations. You can view the presentations from the 2017 conference here... mpn-advocates.net/mpn-horiz..., including once from me about our fundraising. Maz