ET and pregnancy

[bunia8891]

Hello, this is my first post so hello to everyone. I'm 36 years old. Last September, I was diagnosed with the JAK2v617f mutation. I am 28 weeks pregnant and take 150 mg of aspirin a day. Are there any contraindications to giving birth by cesarean section? I have conflicting information from the gynecologist and hematologist.

[Mirabellegage]

Hello and congratulations on the pregnancy. There are some comments about c-sections towards the bottom of this link. I’d certainly listen to the guidance from your MPN specialist. mpnvoice.org.uk/living-with...

[Scarlett500]

Hi, I just wanted to congratulate you on your pregnancy. I don't have any advice though except maybe see if MPN voice can help.

Jeanette

[Tipsy2023]

Morning my daughter 36 has had 3 rd successful pregnancy and caesarean. Taking aspirin and anti hypertensive . She has no diagnosed condition but has had preeclampsia type symptoms each time . She has had to ask lots of questions each time and make sure each person dealing with heris aware but it hasn’t been a proble at delivery she just stopped aspirin and had hearin type injection post delivery for a week or so for you maybe then restart aspirin but keep asking and reminding

I have Thrombocythaemia Jak2 mutation and now told antiphospholipid syndrome and Sjogrens all diagnosed in last 2 years but I think present for many years . So have suggested my daughter be checked but that hasn’t happened yet . Sorry about ramble

[Ebot]

Hi there. First congratulations on your pregnancy.

Second, that’s quite a high dose of aspirin. 75mg is what is usually prescribed as a preventative measure.

Third, it’s usual to stop the aspirin (or any other blood thinner) in the days leading up to surgery and for the surgical team to take extra precautions with the patient. To some extent this depends on your other blood counts but on the couple of occasions I needed a minor procedure I was treated as a high risk patient. The critical thing is your obstetrician and haematologist talk to each other!

Four, MPN Voice website has some useful information on this. As far as I’m aware the MPN team at Guy’s Hospital in London (under Prof Clare Harrison) still run specific MPN pregnancy clinics so have a wealth of knowledge. May be worth emailing them.

Wishing you all the very best.

[Exeter21 in reply to Ebot]

I am on one 75 mg aspirin a day it’s a low dosage & a common dose prescribed for ET but ensure you have an MPN & consult with them 👌

[KLCTJC]

I can’t add to this. I just wanted to say congratulations!!!! Babies are wonderful! Good luck on your journey 😊