I have blood tests every 3 months at QE, they only seem to test for platelets and certain tests. Had a 12 month general blood test at GP last month, they have sent my results to consultant who rang me today to say uric acid higher than normal which is a side effect of MF, I am surprised that I wasn't tested for this at my hospital blood tests. They will send a note to gp that if I suffer with an episode of gout to prescribe medication but didnt want to overload me on medication
Hospital blood test and gp blood test: I have... - MPN Voice
Hospital blood test and gp blood test
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Hi my consultant always gets urea and electrolytes and liver function blood tests And cbc every 3months
I’m going tomoro for bloods as my consultant appointment next week
hope you get on ok
I have quite a few things tested each time so ask them to do yours good luck
For any patient with a MPN there is more to monitoring than a CBC. It will normally also include a CMP and other tests like uric acid. When taking Pegasys (or other meds) it is important to monitor liver and kidney function. If your uric acid levels are elevated, you would also want to know what your other kidney function numbers look like. When there is an anomaly on kidney numbers detected, it is also common to check your kidney function numbers more often than every three months.
Suggest that obtain all of your labs for the last year. You can review the trend lines and compare to when you initiated or changed dose on any medications. This will allow you to have an informed discussion with your hematologist. I am able to easily obtain a summary of all of my labs that shows all of my labs in columns for as far back as i request. Nearly every portal I use allows me to do this myself. I can also request it from providers whenever I wish.
A while back I had some of my kidney numbers a bit off. After nephrology assessment all was determined to be OK. I just needed to make a more concerted effort to drink more water. I upped my water intake and the kidney numbers returned to normal. This was important since I was starting on Pegasys at the time. I drink approx 2 liters (64oz+) of water per day.
Wishing you all the best.
Thank you so much. I will ask after I have had my blood test tomorrow, she said if I had a flare up of gout, which was when my GP tested, as i had a sore middle toe some weeks ago, then to contact my GP and she would prescribe a tablet a day, but didn't want to overload on medication. My platelets have reduced to 525 so I was hoping to reduce the Pegasys from 90mg per week but she said not.
I certainly understand not wanting to add meds. One of the more common gout meds is Allopurinol, which a number of people on this forum take. They can give the best feedback should that be needed.
I have also had sore toes, but it was due to the JAK2 PV directly. My doc calls it "PV toes." Fortunately it resolved.
Suggest you ask for all of your lab results while you are in getting your blood test tomorrow, If they can't access them, they can likely tell you where to get them.
All the best.
My Husband under the QE and they do only certain blood tests, it was only he was put forward for a trial that they realized he had liver problem due to too much iron in his blood. They took about 11 tubes of blood for all the tests that had to be carried out. Now they test for that when he's got his consultant appointment. They test for what you are under the hospital for. Hope that helps.
Thanks Jean, that is helpful, I have MF, I will ask for a print out of the results. It seems strange but they do not send my blood results to my GP.
Thanks again. Jude