Research for ET : 23 and Me is conducting research... - MPN Voice

MPN Voice

10,886 members15,202 posts

Research for ET

yippinurse profile image
5 Replies

23 and Me is conducting research on ET so if you have the diagnosis, you can get a free test kit by answering health questions. I've entered myself and hopefully it will help in the research of MPNs.23andme.com/rare-disease-re...

Written by
yippinurse profile image
yippinurse
To view profiles and participate in discussions please or .
5 Replies
Wally85 profile image
Wally85

Thanks for sharing this information. I was interested, but participants have to live in the United States. I hope it is useful for you and any other USA based members.

Mostew profile image
Mostew

Pity we can't do it in uk

EmeraldA profile image
EmeraldA

I would have done this too! Unfortunately I don't live in the US. x

LT55 profile image
LT55

Thank you for sharing! I have always been a bit cautious /reluctant to share my DNA in one of these databases (I mean, what if my dad isn't my dad? And this will certainly make getting away with murder more difficult :) ). But I love the idea of this supporting ET research, so I signed up. Thank you again!

bjay22 profile image
bjay22

Just wanted to thank you for posting this link about 23&me research. I was debating getting this done for quite awhile just for my own info, but wanted to see if anyone with ET had problems getting good results so did a search on this site. That's how I stumbled on your 2 month old post. I figured I'd check out your link & was happy to see it is still good. And it does make me feel better knowing my DNA might somehow help with research for ET. I signed up & they are sending me my kit. So again, thank you!

Not what you're looking for?

You may also like...

Medication for ET - HELP

Hi everyone. Looking to find someone in a similar boat here. I have Essential Thrombocythemia as...
Emma_shall profile image

Research and bias

I was chatting to my haematologist about various studies and research l had read or seen. He raised...

People with ET can do 23andMe for Free

If you have ET you can do 23and Me for free as researchers are trying to discover more information...
Zeppelin11 profile image

ET

I'm Vietnamese. I'm 28 years old. I was diagnosed ET 1 year ago. I'm married and become a pregnacy...
hongnhi profile image

A Patient Need Survey for Leukaemia and Lymphoma Research

Leukaemia and Lymphoma Research http://leukaemialymphomaresearch.org.uk/ are conducting a ‘patient...
Mazcd profile image
Partner

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.