Hi everyone. Looking to find someone in a similar boat here.
I have Essential Thrombocythemia as well as APS. I'm recently on warfarin for APS but they now want to medicate me for my ET. In my doctors words, 'I'm an accident waiting to happen'.
Anyway they want to start me on a low dose chemotherapy, specifically Hydroxycarbomide. This will be for life & I am only 25.
There are several concerns, one being wether to do interferon instead but my research looks like it can not be a great time. Also any future pregnancy looks problematic.
Anyway if there's anyone on hydroxycarbomide, specifically 25-35 years old, I'd love to find you and have a chat to know what's in store etc.
Thanks so much in advance