I'm Vietnamese. I'm 28 years old. I was diagnosed ET 1 year ago. I'm married and become a pregnacy but I

had still birth at 17 weeks gestation. AT That time I'm depressed. I examined by the best hematogist in my country but no one have experienced to treat for me. I read many research in web and accidental I know this organization. I hope I will find to share your experiences who are treated sucessful by your doctor and have pregnancy again. I love the children.

6 Replies

  • I am so sorry for the loss of your baby, hognhi. I live in the United States. I have ET as well. I was diagnosed at 60 and am now 66, so I do not have any experience with this disorder and pregnancy. I am confident some Health Unlocked members will respond. You may also want to do a GOOGLE search on this and also visit the MPD website. My best wishes to you.


  • Hi, I'm so sorry to hear of your sad loss . I have an MPN which they can't classify, so cannot advise of similar experience but just wanted to send a friendly message of support. Many people here have been successfully treated for years. I am sure you will find help here and also the MPD Voice website. With best wishes for the future, Frances.

  • Hi Hongnhi. I am so sorry to hear about the loss of your baby. I lost a baby at 20 weeks gestation many years ago, but managed to have two more children after that. I have PV now and am to old for more children but this loss may have had nothing to do with your ET and if there is no reason, you should try again when you feel ready. Good luck!

    Mel x

  • I was diagnosed at age 38 with ET. Now I am 50 years old and I have progressed to Myelofibrosis. I am living and being treated in France at the moment. Good luck with your pregnancy .

  • Hello Hongnhi, I am so sorry to hear the sad news about your pregnancy. I would also like to welcome you to our forum, as you can see we are a very supportive group of people. I would suggest that you read as much as you can about MPNs on our website, there is also a section on there about pregnancy in MPNs which may help you If you would like to have a buddy to talk to then please email me at and I can send you the details, I am sure it will help you to be able to talk to another person who has a MPN and who has been through pregnancies. We also have very good information booklets available on all the MPNs and the medications used to treat them which I can post to you, or you can download and print them from our website Best wishes, Maz

  • thank you. I sent an email to you

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