From our friends at Patient Empowerment Network.
How Do You Empower Patients? A very nice brief presentation by Dr. Claire Harrison about how to empower patients.
powerfulpatients.org/2023/0...
What Patients Should Know About Developing MPN Treatments and Research - Interesting broad review of advancing MPN treatments by Dr. Gabriela Hobbs. About 30 minutes,
thank you hunter5582, it’s always good for us to remember that we ourselves are a very important link in the management chain of our conditions. We must try not to be passive and good doctors (like Dr Harrison) will always welcome our interactions.
Thank you for reminding us all.
Thank you Hunter. Just watched both and found them positive and informative for the future of MPN treatments. It's also encouraging to hear the experts encouraging patients to be pro active in their care because in practice it is very often difficult for some patients to be assertive even when they have armed themselves with research and knowledge.Many of us have you to thank for the nudge in the right direction.
Thanks for sharing. I enjoyed both of those.
Did I understand her to say that their studies on decreased allele burden did not show positive significance?
I think what she is saying is that we just do not know yet the significance of reduced allele burden. The evidence will need to be gathered over time. My MPN Specialist had a really good take on this. Her take is that it is a good thing to reduce the allele burden but we do not know how good yet.
