Re - feeling my spleen : Thank you for all advice... - MPN Voice

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Re - feeling my spleen

lizzziep profile image
3 Replies

Thank you for all advice. I have finally got hold of the Specialist Clinical Nurse, a lot easier said than done! She is arranging an ultrasound to check if the pressure is from my spleen or not.

I did try to get through to my GP, but failed to get into the first 15 that get call backs! I have to try again another day. I’ll wait until after the scan results.

I always feel as though I’m being a nuisance when calling the clinic or GP - it’s true what one of the people who replied to me earlier said being assertive gets you better treatment, being assertive doesn’t come naturally to me when asking on my own behalf, however helping someone else I can be insistent!

Thank you all for advice and encouragement to keep persisting.

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lizzziep profile image
lizzziep
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3 Replies
Margo18 profile image
Margo18

Hi Lizzziep

I’m glad you have finally got some help. I rang my consultants secretary this morning about this spleen business too and found myself apologising for troubling them Being assertive doesn’t come naturally to me either and it’s hard to change your personality

Good luck to you.

Margo

mhos61 profile image
mhos61

Well done Lizziep.

I’ve always been very assertive on behalf of my hubby, slightly less so for me, although I have become much better at advocating for myself over the last couple of years.

Hope you get the answers you deserve.

hunter5582 profile image
hunter5582

As you have just demonstrated, assertive patients receive higher quality care. Passive patients do not. You are most certainly not being a nuisance. You are holding providers accountable for providing adequate care. It is absurd that a provider would limit the number of call backs from patients that need care. It might take longer, but all patients deserve a call back. What would be even better is to simply answer the call in the first place. Some providers can take a day or two, but most always get back to patients who send a message in the patient portal, contact the nurse support line, are leave a message. That is simply providing adequate care.

All the best to you.

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