Started Peginterferon!

[Fairbank]

Hi all

I’m 72 old very fit female diagnosed with ET JAK2 + 2 years ago, platelets 650. Started on Hydrea but had too many side effects although on a low dose. Now on Peginterferon Alfa2a on a low dose 45 micrograms per week plus baby aspirin. Started well five weeks ago with no side effects but now am suffering from a lot of pain in my arms, back and head and other odd places. My question to you all good folk is ‘should I stick with it for a little longer?’

I’m having a blood test tomorrow to check platelets so fingers crossed they are going down. Any feedback will be much appreciated.

[Hidden]

HI Fairbank lm in a similar situation was on Hydroxy for 2 years and felt rotten. Changed to Peginterferon 2 weeks ago and had side effects within a couple of days. Just waiting today to take second injection although lm struggling with migraine behind my right ear and muscle pain. I will try however to give it a fair go my senses tell me that Peg could work for me.

Wishing you the best outcome tomorrow.

Adiewon

[Fairbank in reply to Hidden]

Thank you and wishing you the best too!

[EPguy]

I've been on Besremi for 8 months. My Dr said to expect various muscle, bone and joint pains. I had some early but it got better and is now rare. I do have other issues however. My opinion is if the pains are tolerable it's worth holding out for the benefits of IFN. Your Dr should be carefully watching your liver numbers (ALT, AST) as you proceed with the IFN.

Of course our MPN alone can cause all these troubles too.

[Wyebird]

oh dear I’m on Peg too. I suggest contacting your nurse first. It could be unrelated x