hello all hope your all well my question is has anyone been on the keto diet I have ET calr I am
On Pegasus 190 mill a week also asprin and sertrelin I was just wondering would it. Be safe for me to try as I have the worse drenching sweats and my fatigue is getting me down I thought it might help to give this a go as I am eating all the wrong things thanks in advance x
hello Angeltwin, you could ask your haematology nurse specialist for dietary advice, and also your GP can give you lots of advice. Maz
As Maz suggests maybe wise to start with a normal healthy diet first, Keto isn’t for everyone and if you do go that route keep an eye on cholesterol as it can increase on Keto.Us with MPN are already at increased risk re clots etc so we need to be careful re diet and hopefully exercise.
The full on "true" keto is quite extreme but cutting out refined carbohydrates and sugar is generally agree to be healthy. About ten years I was having problems with badly swollen feet and persistent nasty toe infections. My GP and my haematologist were sympathetic but couldn't help. In desperation I bought a book about water retention and one possible cause it suggested was wheat. I stopped eating wheat and within two weeks my infections were starting to clear and my feet returned to normal size! I also lost two stone over the next few months. I had ET and was on Hydroxycarbamide.
Interestingly I can now eat wheat (in fact I'm currently eating loads of carbs as I have to gain weight).
I am not offering advice here, just my own experience, so please don't leap into an extreme diet on my say so!
Thank you so much for your reply .
Regarding diet, there is evidence in support of a Mediterranean diet, which helps with inflammation and on the whole is healthy and safe. Any radical change in diet should be reviewed with your care team, but be aware that many doctors receive very little training regarding nutrition/diet, which seems odd but is often true. There are specialists with greater expertise, including Integrative and Functional medicine docs. Nutritionists can also be quite helpful.
All the best.
Thank you so much for the info
I was just about to say Dr.s have little experience / training in food as medicine. Also to recommend Mediterranean diet.
Hunter got there first !
You could experiment with not eating certain trigger foods like wheat / dairy.
Get to know what feels good for you.
If you can afford to consult with Nutritionalist or another practitioner you might feel supported to change diet .
Good luck
