Hi all!
I was diagnosed with ET JAK2 + about 6yrs ago after having the classic symptoms of fatigue, itching, pins and needles, migraines etc. I'd been having odd symptoms for years before, including spontaneous bruising and a miscarriage 19yrs ago caused by a haematoma forming in my womb. All tests back then were negative, but it does make me wonder why my body was having these symptoms for so long.
Anyway, after my initial diagnosis, I was put on daily aspirin which stopped all the symptoms I'd been getting, including, thankfully the debilitating migraines. At the beginning of this year though, I started getting stomach problems with the aspirin, so my haem prescribed clopidogrel which I'm tolerating well. My platelets had been stable in the high 400s, but at my last appointment had gone up to the high 600s. I know this isn't considered very high in the grand scheme of things, but I seem to react very sensitively to any changes in my body. I've been extremely fatigued at times lately. I've been a vegetarian for many years but am considering introducing some meat back into my diet as I feel rather depleted at the moment and my diet just isn't cutting it. I'm craving sweet things a lot which I know won't help in the long run, so try to avoid and I do eat a very healthy diet. I'm just wondering if there are other vegetarians out there with any dietary tips (I'd prefer to stay veggie or at the most eat fish) to keep me on tip top form. I'm 41, work full time as a nurse, walk my dog twice a day and consider myself fairly fit. I've read other posts that talk about not pushing through the fatigue but letting yourself rest; if I did this I wouldn't get anything done or have a life!
Many thanks
Lucy
Quality of life and exercise are so important. Exercise is something I force myself to do. However too much and I sink into fatigue mode. Followed by self pity and low mood for a few days. Your haemo could check your iron and b levels.
I take chai seeds on my cereal and b12 tablets. Don’t take supplements without discussing with your haemo though.
Oh how I wish a mathematician could come up with a formula for each of us.
God luck
B12 & Chia are two things I take also. Add to that Maca powder, Moringa Powder, Vitamin D and lots of minerals, along with always having been an athlete helps me feel great.
I’ve stopped taking the chia seeds as I have maximum ferritin levels. I must admit I’ve been lazy with the b12 and vitD must restart.
Thank you for the prompt