thalidomide

[WeeHarry]

Hi

The hematologist has raised the option of prescribing thalidomide. I am taking ruxolitnib 5mg twice daily and inject eprex once weekly zario 3 times a week. I have MF . I will be greatfull for any info form anyone with experience of this drug.

[hunter5582]

I have no experience with this at all, but I have seen references in the literature. haematologica.org/article/v...

news.cancerconnect.com/myel...

I would certainly be sure to review this with a MPN Specialist if you have not already done so. Hopefully others on the forum can speak from their own experience regarding this treatment approach.

All the best to you.

[Mazcd Partner MPNVoice]

hi WeeHarry, this information on our website has more details about Thalidomidempnvoice.org.uk/about-mpns/...

[champ30]

Hi,I have been taking lenalidamide /revlimid which is a thalidomide drug.I have MF/MDS. and was taking Ruxolitinib but was having lots of infections (I also suffer bronchiectasis,a chest condition. My haematology doctor put me on lenalidamide and I was great for 2 years...no transfusions and less infections,and much more energy compared to now.However I developed seronegative inflammatory arthritis in June 2020 and am now also taking sulfasalazine meds for it and unfortunately I am at present having transfusions regularly ATM every 3 weeks.

I'm about to change from lenalidamide to another med( telephone consultation this morning) and at present not sure what it will be. Lenalidamide was great for me at the time. Like you I didn't know anyone else on a drug like this.

Kind regards.Lynn

[Stripecat]

Hi WeeHarryHow old were you when you were diagnosed with MF?

[WeeHarry in reply to Stripecat]

HiI was 64 in 2007 thank you.