I'm just wondering if anyone has any links to articles on fatigue with MPN- PV in specific. I'm 5 weeks post op from having my new hip and that's gone really well but I'm really struggling with fatigue. I should be grateful for all this beautiful weather we've had during my recouperation but I don't think the heat is great for us with MPNs. My gran had PV and I just recall her sitting there all summer in her nightie with a fan on and not doing much!
I go back to see my hip specialist in 10days but work have referred me to occy health prior to that. Obviously its still fairly early days after major surgery and I just hope the occy health team appreciate that and the MPN issues. Previously I did very long stressful days as GP and I just can't envisage managing them safely again at the moment and possibly ever, alongside parenting a 7 year old. I'm not sure how up to date the occy health nurse will be on our conditions so I thought I would try and get some info in readiness for the appointment. It was the occy health Dr I saw in Feb who advised I stay off to recover from all the venesections etc and get ready to have the hip op after being diagnosed with PV at the end of 2017.
My latest Hb/HCT fine as lost 3 pints during the op by the looks of things but platelets still over 600 and LFTs deranged despite the hydroxy so at least my bloods are evidence that my bone marrow still misbehaving and I'm not fully fit.
I suppose I'm just a bit anxious as have never had time off apart from maternity leave before and returning to work is bit scary after all this time. I just hope a phased return is an option and long term I hope the practice will allow me to reduce my sessions and avoid the long days fingers crossed but we are desperately under Dr so feel guilty re that.
Anyways sorry for the waffly post but if anyone has any links to fatigue articles I'd be most grateful and thank you all for your ongoing support and help. This group is amazing.