I haven't written in awhile

[Wilma66]

I have been on here in awhile. I do get on the forum often.

I was diagnosed in 2013 with ET and Jake positive. I started aspirin and not long after that Hydrea. I'm not having any issues with Hydrea, just don't like taking it.

I started having issues with with my colon. Two weeks ago I had to have surgery for severe diverticulitis. I've been through alot with this miserable stuff. I had 12 inches of colon out and abscess. With prefermation, I am on the mend and doing good. I know it will be a long road.

Has anyone here on the formun had this problem before?

[JojoWonder]

I’m sorry, I don’t have an insight to your experience. I just wanted to say get well soon. It sounds like you’ve been through the mill 😔 Sending love 💗

[Wilma66 in reply to JojoWonder]

Thank you so much ❤

[Hidden]

How awful for you. Hope you make a good recovery.

[Wilma66 in reply to Hidden]

Thank you 🧡

[Bridie123]

Oh you poor love, I hope your pain and discomfort rapidly ease soon. 💐

[Wilma66 in reply to Bridie123]

Thank you 🧡

[JediReject]

Hi Wilma , , just to wish you a speedy recovery and pleased your surgery went well, , I hope this radical intervention means you can get your life back on track pain free given time to heal.

Luckily for me I have no experience of intestinal or bowel problems but when you informed us of your upcoming surgery a couple of months back a few others here had so maybe they will chip in.

Good luck going forward.

Chris

[Wilma66 in reply to JediReject]

Thank you Chris!

[Mazcd Partner MPNVoice]

hello Wilma66, I do am pleased that you are on the mend and doing well, I hope you continue to recover well from your operation. Wishing you all the best, Maz x x

[Wilma66 in reply to Mazcd]

Thank you!!

[SusieG60]

Hi Wilma66. Im also Et jak2. Take hyrea a d aspirin. Im 61. Last year i had my first sever flare up of Diverticulitis. It was bought on by sever food poisoning. I was in hospital for a couple of weeks but extremely ill for a couple of months. I still havnt gained the weight i lost at that time. I never had surgery but am wishing you well. I suffer on and off with slight flare ups now. Xx

[Wilma66 in reply to SusieG60]

Thank you and please take care ❣

[Wilma66 in reply to SusieG60]

I'm so sorry to hear about your experience with diverticulitis. It can be very intense. I hope you are doing better and continue to heal ❤

[Wyebird]

Wishing you a speedy recovery c

[Wilma66 in reply to Wyebird]

Thank you

[Cja1956]

Hi, Wilma, sorry to hear of your ordeal. It sounds awful. I have Post Et Mf, also Jak 2 positive. I was diagnosed with IBS a few years ago, but instead of taking medicine, I changed my diet completely, and went off sugar, dairy, and gluten. My problem cleared up. I’m now on a regular diet, but my yen for sugar went away, and if I eat too much starch, I get a stomach ache. . I would talk to a nutritionist and find out what you should be eating for the future.I hope you continue to heal and I wish you a complete recovery.

[Wilma66 in reply to Cja1956]

Thank you so much for your input. I appreciate you 😊

[Wilma66 in reply to Cja1956]

Thank you so much for your input❣

[Scottishterrier]

Hi Wilma I have been on hydrea for many years due to finding out I had a blood clots to the liver and put under the care of a consultant gastrointestinal Dr my heamatoligst gave me a list of treatments hydrea being one of them which I opted for they do make you tired but my consultant says if I could have a nap in the afternoon and felt a bit nauseated but my gastrointestinal consultant put me on domperidone and I have never looked back and that has been many years I have been on hydrea yes I have other ailments but the hydrea keeps my platelets well under control so keep going with itYou stay safe

Best wishes

Scottish Terrier xx

[Wilma66 in reply to Scottishterrier]

Thank you so much for your input. I do appreciate you 😊

[Scottishterrier in reply to Wilma66]

Any other information just let me know was in late twenties when diagnosed with et jack 2+and now hyperthyroidism and ibs but always happy maz and your selfStay safe

Scottish Terrier xx

[Wilma66 in reply to Scottishterrier]

I too have hypothyroidism, since 2002. Had cancer on thyroid

[azaelea]

So glad to hear you’ve had your surgery which sounds very unpleasant. Hoping you are feeling a bit better each day and will soon make a good recovery and be free of the dreaded diverticulitis. 🙏🙏Fran xx

[Wilma66 in reply to azaelea]

Thank you Fran!! I'm improving each day.

[azaelea in reply to Wilma66]

xx❤️

[Wilma66 in reply to azaelea]

Thank you

[mhos61]

Hi Wilma, wishing you well in your recovery. I hope this intervention brings you much relief and improves your quality of life.Xx😘