ET

[glyndale]

my platelets were over 800 2 years ago,had lots of tests and regular bloods and started on aspirin, by my consultant.However now my platelets are almost back to normal levels does anyone know why.Thanks.

[nightshadow]

Hard to say, what did your test results show?

[glyndale in reply to nightshadow]

Hello tests showed I probably have essential thrombocytosis.

[nightshadow in reply to glyndale]

Have the platelets been dropping over time? I would say that that is indicating that aspirin is the reason. No idea why there would be a sudden drop though.

[glyndale in reply to nightshadow]

ok thanks yes they have been dropping over the last few months,the only thing I have changed is I don't drink socially as much as I used to ,so don't know if that's made a difference.

[nightshadow in reply to glyndale]

Well as Mazcd recommends, it is time for a chat with the MD.

[Mazcd Partner MPNVoice]

Hi Glyndale, I can see from your previous posts that you were starting on Hydroxycarbamide about a year ago. Have you been taking these as well as the aspirin? Maz

[glyndale in reply to Mazcd]

Hello no I wasn't started on hydroxycarbamide, just aspirin.

[Mazcd Partner MPNVoice in reply to glyndale]

This is something you need to discuss with your consultant for advice on this and the next steps for your treatment plan. Best wishes, Maz

[glyndale in reply to Mazcd]

ok Thank you.

[hunter5582]

Did you test positive for a driver mutation(JAK2, CALR, MPL)? Did you have a Bone Marrow Biopsy with positive results?? In the absence of those findings, I would be wondering about secondary thrombocytosis as opposed to ET. The only way to know will be, as Mazcd suggests, to talk to the doc.

Do let us know how things turn out.

[glyndale in reply to hunter5582]

bone narrow was negative not sure about the mutation, thanks for your advice i will speak to my consultant.

[hunter5582 in reply to glyndale]

They should have checked for the three driver mutations when they did the BMB. Hope you find out something soon.

[glyndale in reply to hunter5582]

ok thank you.

[Hidden]

Well I think that’s great news! Whatever caused your platelets to go up might have been resolved. A lot of things can cause platelets to rise. I’m diagnosed as Idiopathic Thrombocythemia..... in layman terms: they don’t know the cause

[glyndale in reply to Hidden]

ok thank you, maybe my consultant can enlighten me when I see him.