ET Jak2 : Hi Have had ET cancer for about 6 years... - MPN Voice

MPN Voice

10,886 members15,201 posts

ET Jak2

Leepee profile image
15 Replies

Hi Have had ET cancer for about 6 years I’m 54

Platelets have always sat around 500 to 530

Just had my bloods come back and there at 630 the only thing I have done different is take a 7 blend Mushroom supplement which has been great for brain fog and not catching a cold

But would this make my platelets go up ?

Thanks

Leepee

Written by
Leepee profile image
Leepee
To view profiles and participate in discussions please or .
15 Replies
hunter5582 profile image
hunter5582

This is well within the normal variance we see in platelet levels. Platelets can vary by as much as 100 in a single day based on what is going on in the body. My PLTs used to cycle from the 500s to the 700s. If something was triggering reactive thrombocytosis, PLTs could go into the 900s.

An isolated read a little higher than you usually see is not something to worry about. It is the trend over time that matters.

Leepee profile image
Leepee in reply tohunter5582

Great thankyou 😀 still want to keep taking the supplements

Mostew profile image
Mostew

Good tokeep an eye on changes. But as Hunter says . One off raise. Of platelets isn't cause for concern. What is in the blend of mushrooms you are taking. ?

I have been taking Coriolus ( turkey tail)

For a couple of years

On recommendation of functional practioner.

Leepee profile image
Leepee in reply toMostew

Hi I take 7 blend by touchwood mushrooms it’s a liquid that they make in Denmark WA 😀

Mostew profile image
Mostew in reply toLeepee

Sounds like a good company

Richinspirit profile image
Richinspirit

no need to worry - this is just a snapshot. Start worrying when there is a continuous trend.

Leepee profile image
Leepee in reply toRichinspirit

Yes have to have blood done 3 monthly now

Richinspirit profile image
Richinspirit in reply toLeepee

That’s better. Used to have them done every 4 weeks and they went up and down like a yo yo and it was very stressful. Good luck with all this stuff.

Mishie14 profile image
Mishie14

my platelets can swing by 100k or more with nothing out of the ordinary. I try to be consistent with taking of blood tests on same day of week and at early time, drink plenty of water and always fast before. Have learned platelets are affected negatively by duress and recent vaccines as examples. Hematology always says to not worry about swings—look at the trend.

Exeter21 profile image
Exeter21 in reply toMishie14

Fasting is not essential before blood tests for our complaint only if it was relating to cholesterol reading checks. I have bloods taken varying dates & times which have never effected readings 👌

Mishie14 profile image
Mishie14 in reply toExeter21

I fast because I am at lab for blood draw by 6:30 AM every Tuesday morning. Rather than rush breakfast I have a big drink of water and go to lab after taking care of our little schnauzers AM routine. Then I am back home within an hour and can take my time eating a good breakfast. I also noticed that when rushing breakfast I tended to be in grab and go mode with a choco chip muffin. That got my glucose readings up. Though never to alarm level, I didn’t like it being higher than normal. So today’s lesson in too much info. 😁

Roxanne22 profile image
Roxanne22

Thanks Leepee for your enquiry - yes trends are where its at and your level is still moderate for someone with MPN so don't concern yourself too much, and great to see that you are taking mushrooms as a supplement - this is something that I have been meaning to look at introducing again into my routine and so thank you once more for the reminder :) My belief is that an MPN can be a gift if it prompts us to honour our bodies in the most loving and nourishing ways, and irrespective of our condition there is so much we can always do to help our bodies heal, and manage on this curious and uncertain journey - Keep the Faith peeps X

Leepee profile image
Leepee in reply toRoxanne22

Thankyou 😀

MissLesley13 profile image
MissLesley13

Mine also seem to shoot up sometimes . I had an infection and everything was crazy in my bloodwork.

Leepee profile image
Leepee in reply toMissLesley13

Yes I was wondering if maby infection could make them go up 😀

Not what you're looking for?

You may also like...

ET + JAK2

Had appointment with hematologist today. My platelets have been hovering around 200 for quite some...

ET JAK2 positive

Hello all, This is my first post although I joined the forum about two years ago. Not sure why I...
pjm03 profile image

ET , Jak2 positive.

Having being diagnosed with ET last August, I have been on aspirin only until my haematologist said...
Rebus12 profile image

jak2 with ET

Saw my heamatolgist yesterday , who confirmed for sure which mpd i have at the moment she still...

ET/Jak2 postive

Hello! I was recently diagnosed with ET. I had not had bloodwork done in 15 years but just...

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.