Peg injections side effects? : Hi Ive recently... - MPN Voice

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Peg injections side effects?

Mustang50 profile image
11 Replies

Hi Ive recently started peg injections put on a low dose of 45ml, for those who are on peg how soon or late can the side effects be expected or are the majority of you well on it? Im fine so far but wondered if this was the calm before the storm, wasn’t really told much when I went to hospital what to expect but guessing on the whole this is different for each individual many thanks!

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Mustang50 profile image
Mustang50
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11 Replies
Manouche profile image
Manouche

I’m having weekly injection of Pegasys 135 for about 8 months. I feel great from day one after the injection with no side effects. It feels for me like some sort of high dose of vit C injection, rejuvenating !

Mustang50 profile image
Mustang50 in reply toManouche

Thanks so much great to hear, I’am feeling much like that myself, but wasn’t sure if this because only just started, making the most of feeling great since having symptoms four and half years!

Hearingu profile image
Hearingu

I have been on peg for two years . Started on 45 mg weekly but down to every three weeks now and all levels normal now . Had no side effects from beginning . I inject in stomach and use EMLA cream on injection site beforehand . Never feel a thing ! Cream from over counter at chemist . I was apprehensive at first as I hate taking medication but best decision I made . Suits me fine , bloods are under control, minimal itching and I feel well . I hope it suits you too ! Good luck

Mustang50 profile image
Mustang50 in reply toHearingu

Good tip thanks so much for replying great advice stay well!

Hopetohelp profile image
Hopetohelp

Thank you for this post and to the people who have answered. Just had call from hospital myself telling me to go in for face to face appointment as they want to start treatment and hoping to be offered Pegasus so very interested in any comments. Very encouraging,

Mustang50 profile image
Mustang50 in reply toHopetohelp

Good luck with it all, it’s all a feels bit scary before hand but it’s the unknown. It wasn’t as bad as I had built it up in my mind to be and we learn to get on with it and enjoy life!

Hopetohelp profile image
Hopetohelp in reply toMustang50

Thank you

CAOR profile image
CAOR

I've been taking weekly pegasys shots for about 4 months now at 90ml and I have flu like symptoms for the first 24-36 hours afterward. I also have had some lower back pain. I'm so glad to hear that you haven't experienced any of the side effects. Much luck and prayers to you!

Mustang50 profile image
Mustang50

Sorry to hear of your symptoms and hope in time these pass for you! I had a good first few days but now the week is nearly up some of the symptoms before being diagnosed starting to come back pain in the back, legs & pelvic area waking up hot and in pain early hours, guessing each and everyone is going to react different, take care keep safe and stay as well as we can!

EleanorPV profile image
EleanorPV

Yes as you say it's different for every person. I felt so much better after my first injection. The first year I took paracetamol, within 1 hours I felt very tired. The night of my injection I usually have a good nights sleep. First injection was 2016. Good luck.

Mustang50 profile image
Mustang50

Strange you should say that because the first night after having injection had the best nights sleep ever! Best wishes.

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