How come Valentines Day is ALWAYS aimed at the younger generation?

[Adlon57]

We all need someone to love [you could make a song out of that?] it's too commercial, what about the older person OR the older disabled person. Commercialised claptrap, for the younger generation, we ALL need companionship, friendship, even love, especially in times like this. The disabled person is ignored, sometimes for obvious outward appearance, sometimes in slowness of speech, or when their medical condition is discovered. My example, nicknamed the "ambulance man", living on my own for eighteen years, no, surviving on my own for practically a lifetime, relatives have a life to live, thus more solitude, probably why I can survive this pandemic better than most disabled, more practice! Even when this pandemic slows down, think of us, there are plenty of us around, although we are one of the main groups to be hit now [just had my first jab] a phone call, an email, [later on even a visit?] really does make our day!

[Otterfield]

I'm sorry you're feeling so sad. Could you tell us a bit about yourself? Which MPN do you have and how is your treatment going?

[Adlon57 in reply to Otterfield]

Perpetual boredom, I look so 'normal', treatment for what, lost count, almost prefer own company, [what is MPN?] , have so many different medical conditions, that is why so high in vulnerable stakes? One condition settles, another one starts, I have aversion to pain, HPT, pain killers usually no use, I could have a heart attack but think it was wind? One condition affects effects of another, I slashed my right hand four years ago, went to A&E doctor TOLD me I would need pain killers while she stitched my hand, I said no, I was 'chatting' her up to keep her hands steady while she stitched me up, [very nice girl, if I had been about thirty years younger, and a better state, I might have asked her out?] I am 64, a genelogist and historical researcher, have retired early since 2013, every time I visit my GP he is working on his laptop, have not seen his face in years! Epilepsy and Schwannomatosis which I think are somehow connected? Osteoarthritis, stroke, I could go on, but body knackered and early dementia [could be because of long term effects of epilepsy medication?] what ever, I now get treated to the "How are you darling?" "What age are you, boy you do not look it" "You are looking well" [I am down in the A&E, must be something wrong with me?] treatment down at the local A&E ward. I have a high IQ, qualified cook, history degree, near enough number of books to rival my local library. I hate i-phones, fancy mobiles, smart phones, luv privacy, [a 20th century man] a side effect of my isolation, I like speaking to a person face to face, do not like technology, but am used to using laptops for near twenty years so I know their pitfalls. My current pain is a broken skull, Jan. 2018, the conspicuous scar from it, heart flutters, the obvious shortcomings on the working of my brain, for which the current pandemic has not helped in the speed of repair for which it obviously needs, thus I believe the reason why my vaccine jab was pushed up the order! Whew!

[Otterfield in reply to Adlon57]

MPNs are Myeloproliferative Neoplasms, there are three: Essential Thrombocytosis, Polycythemia Vera and Myelofibrosis. They are cancers of the bone marrow and this group is for the support and information of those of us who have them. You seem very unhappy and I wonder if you would find more appropriate support in a group which specifically supports those with mental health issues. That's just a thought and I do hope you find the help you need, as you seem to be having a really hard time.

[Adlon57 in reply to Otterfield]

Yep! definitely not a good time, actually would schwannomatosis fit in there somewhere, apparently I'm the only one in Ireland with the condition, but NOBODY over here knows anything about it, it is a rarer form of neurofibromatosis, sometimes called NF3? Or genetic osteoarthritis which I also suffer from? Sorry for my ignorance and thanks for your patience!