Increased meds

[redumbrella]

Hi all, An update, last September following a B.M.B. I was diagnosed pre M.F., up until this I was on daily Asprin and Venesection as needed. My Haemo decided to put me on Hydrea every other day. This I tolerated very well and until recently my bloods had remained below .45 and my Bone pain improved quite a bit. However while I was away in Canada for 4 months my Bone pain returned with a vengence particularly at night especially in my left leg. This settled down somewhat 2 weeks or so prior to my return home 3 weeks ago. My Haemo asked me to have my bloods done prior to a Telephone consult on Wed last. Duribg the consult she informed me that my Bloods had increased to 46.3 and that she would arrange a Venesection, my first since going on Hydrea. She also said she was increasing the Hydrea to 5 days a week Mon to Fri with a break at the weekend. Fingers crossed!

Keep well all and stay safe.

Garry

[hunter5582]

I would wonder if PEGylated Interferon might be an option for you. Some docs now see it as preferable in delaying the progression of MPNs. It is also not so toxic as HU, which may become an issue with increased dosing. Of course, PEG-int has its own risk/benefit profile. If you are not already familiar with it, you might want to find out more.

Hope everything works out well for you. All the best.

[redumbrella in reply to hunter5582]

Thank you for that, I have being considering consulting an MPN Specialist here in Ireland albeit I may have to wait until covit lessens somewhat, I will mention Peg to her if this happens.

Garry