Homeopathy medicine

[Aojai]

Does any member has experience or consulted homeopathic doctor for treatment of MPNs? Any results or usage outcome ??

[Mostew]

I wish my homeopath was still nearby , I would definitely recommend seeing one you feel is good , for support . I saw one for over 4 years .

Be prepared to look deep into yourself .

I can’t find one to replace her yet

Good hunting

[Aneliv9 in reply to Mostew]

Did you benefited from homeopathy?

[Aneliv9]

I take homeopathic therapy. But homeopathy does not treat specifically MPN's,cause its a holistic treatment. It does not target a symptom (even if this is an MPN). It tries to bring the hole system's balance back,so if something is possible to be reversed, then (in theory) it will.

[Aojai in reply to Aneliv9]

So wht u trying to say ? Can it treat or cure ET or jak2??

[Mostew in reply to Aojai]

I havnt had a homeopath since being diagnosed withJAK 2 positive. . Also have Hashimoto . Which homeopath really helped with . But went much deeper to old childhood stuff .

Got to be good if you are committed to taking active part in process ... !!

I guess I see having ANY problem to try and work through as a journey to wholeness of spirit ( and hopefully physically to !!!! )

[Aneliv9 in reply to Aojai]

I am just trying to say that IF homeopathy works (cause i haven't a clue yet), in theory it could cure every anomaly in our body and mind. It takes time to work and i want to believe deep in my heart that it can,but my mind finds it very difficult to happen. I just give it a try cause i have NOTHING to lose. I will also mention something with very much hesitation. The last six years my spleen measurements where from 12,8cm to gradually 15cm (last summer's measure). In my last scan a month ago, it was 13.5

But i 99,5% believe that it is the normal range fault.

[Mostew in reply to Aneliv9]

Homeopathy is so good on emotional level , which then effects physical as well . I know when I have been feeling despondent and correct remady given it helps me through .

Do you do any ‘grounding’ things like Qi gong , yoga etc . Also helpful and of course eating what suits your body .

At the moment I am trying to avoid taking hydrox. For high platelets and know what you mean about being hestitant to mention things that are going wrong . I do same .

I’ve got hospital appointment for blood test etc on Monday .

Not looking forward to it . BUT I feel so much more energy an no symptoms . Last time they went up despite my efforts and will have to take conventional meds if higher again

Take care

[Osteomyelio in reply to Aneliv9]

For me, I embrace homeopathy, nutritionists, and some supplements.

I don’t do it blindly and I study the quality of my products. Some things have been quite helpful

[hunter5582]

No to homeopathy but yes to Integrative Medicine (Functional Medicine). Some complimentary health approaches can really help in my experience, though they do not offer a "cure" for MPNs. For dealing with systemic inflammation related to the MPNs, I do think these approaches can be very helpful.

Things that have worked for me include: Turmeric-Curcumin, Qigong, Nutritional analysis and targeted supplements to address deficiencies. I am about to try N-acetylcholine, for which there is some research to support effectiveness.

I do think the more wholistic approach to healing is very important. It sometimes get lost is the sea of specialists that there is a whole person to treat. Hope you get some answers soon.

[ksos in reply to hunter5582]

Hi -- I was very interested to read what you wrote. I'm starting to investigate a more wholistic approach to dealing with the systemic inflammation I experience and am wondering where to start. Is there a difference between functional and integrative medicine? And if so, what determines which you use, or which you use when? Also, did the approach you used include the nutritional analysis, or did you have to find a separate practitioner for that? Finally, have you tried acupuncture? I just started that, but too early to tell if/how it helps. Thanks for your patience with all the questions!

Best,

Kim

[hunter5582 in reply to ksos]

Great questions. Functional and Integrative medicine practitioners are often one and the same. Here are two quotes

Integrative Medicine (IM) is healing-oriented medicine that takes account of the whole person, including all aspects of lifestyle. It emphasizes the therapeutic relationship between practitioner and patient, is informed by evidence, and makes use of all appropriate therapies.

A personalized and integrative approach to healthcare which involves understanding the prevention, management and root causes of complex chronic disease. ... Functional medicine treats the person who has the disease, not the disease the person has.

My doc does both Integrative/Functional. Nutritional analysis is a part of this approach. My doc used a panel called NutrEval. The analysis showed significant Vi B/Folate deficiency, Moderate Magnesium Deficiency and elevated mercury levels. We are addressing these issues as a part of my overall healthcare plan.

I am seeing the Integrative Medicine doc for several purposes.

1. To work with a doc who looks at the whole patent.

2. To consult with a doc who is knowledgeable about complimentary health approaches that may help manage the issues I experience

3. To consult with a doc regarding supplements risks/benefits and how they interact with conventional health approaches. If something is biologically active enough to help you, then it can also hurt you. Very important to have a doc with the right KSAs to address this.

The Integrative/Functional Medicine doc I see uses both conventional Western medicine and complimentary health approaches. She is one part of my overall health team that includes a PCP and a whole bunch of specialists.

I have not tried acupuncture though I would certainly consider it. I do practice Qigong, which is based on the many of the same principles as acupuncture. In additions to the benefits of energy flow that come from Qigong, it promotes mindfulness, is great for stress management, and is a good form of stretching/exercise.

Hope that helps.

[ksos in reply to hunter5582]

A HUGE help -- and very clear. Thank you so much. The more I learn about the possible systemic aspects of this disease, particularly chronic inflammation and genome, the more I've been aware of the limits of western medicine. Luckily, my primary physician is very supportive -- she made the acupuncture referral. If you don't mind one more question, how did you find the doctor you're working with? I'm in northern CA and am lucky that there are a number of sources for integrative/functional medicine, but don't know anyone who is working in this way, so any advice on what to look for is welcome. Again, thanks so much!

take good care,

Kim

[hunter5582 in reply to ksos]

I live in the Eastern Panhandle of West Virginia and base most of my medical care in Northern Virginia. The Integrative Medicine doc is part of the a large multi-provider medical group where many of my providers participate. She was also highly recommended by my PCP. My PCP told me that he does not have the expertise to advise on the use of most supplements and is very supportive of my seeking this additional medical care.

In looking for a new healthcare provider of any sort, I always look at Healthgrades and other on-line ratings, asks doctors and nurses who they recommend, and check the history with the State Board of Medicine. recommendation from other patients who go there can help too.

I do also believe that dealing with systemic inflammation is critical in managing MPNs and related symptoms. hope you find some solutions that work for you.

[ksos in reply to hunter5582]

That's all so helpful -- thank you very much.

[Aojai]

Should ppl with MPNs avoid sugar like it is said to be avoided in case of cancer since cells grow on sugar ? Or MPNs r benign and sugar consumption iant harmful as with other cancers??

[Ettiel]

Hi Aojai,

Yes, I see a homeopath regularly and use homeopathic remedies. As Aneliv9 explained the whole approach of homeopathy is holistic. It treats the whole person and aims to bring the body back into balance. I don’t see it so much as a cure for my MPN (I have Myelofibrosis) as an ongoing support. I wouldn’t advise anyone to alter their medication schedule in any way while taking remedies.

I am all for an holistic approach to health and feel this is greatly lacking in conventional medicine. I find homeopathy beneficial to my physical and mental health while living with my MPN but have no expectations of a cure.

Take care & best wishes for your health,

Ettiel

[Aojai]

Any one dealing with an expert homeopathic doctor? Or can consult and Can run a check on a homeo med called carcinosin ??? For MPNs particularly ET and PV??