high heart rate : I have PV with Jak 2 positive... - MPN Voice

MPN Voice

11,130 members15,587 posts

high heart rate

ramnik profile image
8 Replies

I have PV with Jak 2 positive. Have been taking 1000 mg since 4 months. My heart rate increased from 90 to 115 during this period. Is this related to hydrea

Written by
ramnik profile image
ramnik
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Mazcd profile image
MazcdPartnerMPNVoice

Hi Ramnik, you should see your GP about this. Maz

ramnik profile image
ramnik in reply toMazcd

Thanks for your reply

Cja1956 profile image
Cja1956

I can only give you my own experience. When I was diagnosed with ET many years ago, I became very light-headed and dizzy. I felt like my heart was racing. I went to a cardiologist and had a full work-up. Everything was fine. I learned after a while that it was all connected to my ET. I would still follow Maz’s advice and check it out.

ramnik profile image
ramnik in reply toCja1956

Thanks for your reply

hunter5582 profile image
hunter5582

I have not heard of a link between ET and tachycardia. I did develop paroxysmal atrial tachycardia about a year ago. It was unrelated to my PV. It was related to an electrical problem with my heart. Corrected by catheter ablation surgery. Please be sure to consult with an electrophysiologist re. the tachycardia. It may be a minor issue related to something else - or ay be an early warning of something more significant. Note: not all of our ailments are MPN related, but it always makes sense to consider the links. Even if "unrelated" one issue can affect the other. All the best to you.

ramnik profile image
ramnik in reply tohunter5582

Thank you for your reply. I did some research. Found out my lifestyle had become more sedantry. Started walking for 6000 steps as a start. I find that heart rate has gone down to 105 in 5 days. Hope to keep at the exercise now and keep checking

hunter5582 profile image
hunter5582 in reply toramnik

Better cardiovascular health will help no matter what the underlying issue is. That was precisely the advice from my cardiologist. There re a few other things I have found helpful. I have started practicing Qi Gong (aka Gigong) and Tai Ji Quan (Similar to Tai Chi). These are both an alternative form of healing (Eastern tradition) as well as good gentle exercise, stretching and balance improving. I find it lowers both heart rate and blood pressure. I would still hope that you will see an electrophysiologist to rule out something electrical going on with your heart. Something like a low grade supraventricular tachycardia is something that can be dealt with in a variety of ways. You want to pay attention since these types of issues can progress into something more serious like Atrial fibrillation. You might also want to purchase device called a Kardia (my doc had me get one). It is an FDA approved single lead ECG device that interfaces with your smart phone. You can run your own ECG and it can distinguish simple sinus tachycardia from aFib. Also can provide your doc a better database of what is going on with your heart, FYI - if you are JAK2+, you might want to look into the research on the link between JAK2 overactivation and inflammatory cytokine overload. That is responsible for many of the inflammation related secondary issues people with MPNs face. ALl the best to you.

ramnik profile image
ramnik in reply tohunter5582

thank you very much for the reply. will look into kardia immediately

Not what you're looking for?

You may also like...

Anybody with bradycardia (low heart rate)

Shortly after multiple pulmonary emboli in April, 2022, lead to my long-term NSAID usage being...
TLJ-1 profile image

High rate remission for PV

Dear all fellow MPN, I just received news from MPN Advocacy related Combo treatment (Rux+Peg) for...
william-Indo profile image

High Risk?

I’ve seen the consultant today, all the NSG results are now back. He said they showed I was...
lizzziep profile image

Heart

So who has heart flutters fast heart rate practicality doing nothing it wakes me up I had stress...
Hahag profile image

High platelets

Hi there. I was given a blood test 3 weeks ago from my mental health doctor, I have depression and...
Cutiepiesw profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.