IE - mystery diagnosis

[Aime]

Maz,

Would it be possible to get some clarification about the symptoms, possible causes and any other relevant info about IE from Prof Harrison please.

I feel a newbie to it and I don’t want to give wrong info out as I’m still looking for knowledge myself and there have been quite a few questions on the forum about it. I know it is an MPN forum but feel that IE has a close link with PV.

Hope this is ok.

Kindest regards Aime xx😻😻

[mammared]

Hi Aime,

I found this article to be interesting. Here is the

link:journals.sagepub.com/doi/fu...

I am currently being evaluated for IE. My doctors have reached no conclusion as yet but all roads seem to point to IE.

All my best,

Brenda

[Aime in reply to mammared]

Thank you Brenda, will have a look. Kindest regards Aime xx😺😺

[Sanmob]

Please. What is IE?

Sandra

[Aime in reply to Sanmob]

Idiopathic erythrocytosis. Too many red blood cells, cause unknown, negative to jak2 and jak 12 Xeon mutations. Kindest regards Aime xx😸😸

[Mazcd Partner MPNVoice]

I will ask her. Maz x

[Aime in reply to Mazcd]

Thank you Maz and thank you to Professor Harrison for her time. Kindest regards Aime xx😻😸

[meaboutthis]

Hi (again) Aime! Thanks for your persistence and follow-through. I appreciate the encouragement and the information!