Hi. I am new here. This is my first post. I am a 35, 36 next month, year old male living in Florida. Over Thanksgiving I experienced tingling in my right tricep for a minute or so and a couple dizzy spells lasting about the same amount of time. I then experienced tingling along the jawline on the right side of my face. I made an appointment with my GP. My GP diagnosed me with hypertension, and requested I go to the ER and get a CT Scan and bloodwork. Went to the ER, the CT was negative, but the bloodwork showed I had platelets in the 1200s. The ER suggested I go to a specialist and couldn't give me any other information as to the cause of the high platelets.
I went to a specialist, a hematologist, a week later. He pulled blood to test for mutation, and diagnosed me with ET. I went for a recheck the next week, my HEM did not have the results, but wanted to schedule me for a BMB and said that my platelets had increased to 1600. My HEM stated that I would be put on HU for my ET. So that is my story, so far. I have my BMB tomorrow afternoon, and will probably be put on HU tomorrow as well.
I am anxious about the BMB. I am having it done in the office with local anesthetic. I know it is painful but quick. How long does it take to recover from the BMB? Secondly, and probably more scary for me is the thought of being on a chemo drug for the rest of my life. Is HU as bad as I am thinking it in my mind? I am very fortunate and have a loving wife and 2 daughters, 3 and 6, and I want to be as active and involved as I have always been. I am afraid of getting fatigue and not being able to participate with my family or function as necessary at work. I have not experienced any fatigue that I know of due to the ET, and rarely get headaches. Also I have most likely had elevated platelets for approximately 6 years or more from reviewing my past bloodwork.
BTW this forum seems awesome. It is very positive with people offering solutions, and that is what I appreciate. Any responses to my post will be greatly appreciated.